Sunday, February 14, 2010

Love Is In The Air

Happy Valentine’s Day!
L-O-V-E
It’s a four letter word that often gets misused or taken for granted. We’ve all over used it at one time or another… “I just love….” or even saying “I love you.” and not meaning it. Valentine’s day has always been a day I wasn’t fond of. A day to tell and show your wife, husband or significant other how much you love them. Why can’t EVERY day be Valentine’s day? Why do we have to show it once a year in February? I’d much rather my husband show me he loves me on a day other than February 14th! OK…off my soapbox now….lol! On Friday, Kacey’s class exchanged vaelntines. Once you get to 4th grade, there are no time for parties. Which is sad but true! I’ve mentioned Kacey’s “friend”, Hunter, before. They’ve been friends since…well….before birth. They were inseperable in preschool for 2 years and then when they went to Kindergarten, they were in different classes. They still played together on the playground but that was the only time they saw one another unless it was to wave across the lunchroom at one another. By 1st-3rd grade, they were playing in their own circle of same gender friends. Boys were…”yucky”. Hunter’s parents are friends of ours and his dad and Frankie have been friends since they were little. So during this time, we still saw them but Kacey & Hunter had lost that closeness they had when they were little. Then came Open House this year. We walked into the classroom and there sat Hunter with his Dad. They were finally back together again! All of a sudden, it was like they were never apart. They played together every day on the playground and when it was raining outside and they couldn’t go out, they played games together in the classroom. The only thing they didn’t do was eat lunch together. All of the boys sat at one table and all the girls sat at another. Each class gets 2 tables and they didn’t eat together. Right before the walk last year, Kacey came home so excited. Hunter had come over to her table to eat with her. That was the beginning of such a special friendship….AGAIN. This time it was a bit different though. Hunter hadn’t been around much of the last 2 years so he didn’t know what “diabetes” involved. He joined her walk team and supported her the day of the walk by walking with her for the entire time. It wasn’t long before he was sitting beside her at the table, not across from her. He was curious. The questions came and Kacey answered them with such grace. “What is a pump?”, “Why do you have to do that?”, “Does it hurt?”, “Can you still eat cookies?” and many more. Each day she would come home talking about “educating” Hunter and how happy she was that she had a friend that WANTED to know about diabetes. Why was he different from any of her other friends? Why did she feel so elated when he’d ask if she “felt ok”? Because he genuinely cared, that’s why! He wanted to learn about her diabetes so when they played together and she said she didn’t feel well then he could help her. To have a friend like that is just a gem! She said when they play, he always asks her if she feels ok or he’ll ask her if she’s been in range. These are questions that normal kids wouldn’t ask one another but two friends that are joined like this would. No, he doesn’t have diabetes but he gets it. He cares. Christmas came and they exchanged “special” presents with one another. I could see the special bond between them. They were just like they were when they were in preschool. Wherever Kacey was, Hunter wasn’t far behind. They walked together at Walk-n-Talk every day and it was such a neat thing to watch. Then…Valentine’s Day. She spent the days before making Valentine’s for all her friends but then came Hunter. She asked if she could get him something special. Then she went in her room and came out with one of the sweetest notes that I’d ever seen written. I couldn’t let this note disappear into the hands of someone else without having a copy of it for safe keeping. I took a picture of it. Was it her first love note? Was it just a heartfelt note to a friend? I don’t know! It’s such an innocent kind of friendship and love they have for one another. They’re so sweet together! She took him a stuffed dog with 3 different pictures she made him. Then I got a message from his mom asking if Kacey could come to his birthday party on Saturday. Hunter did NOT want any girls there, except Kacey. Honestly, I don’t think they think of gender when they are together. They’re ….FRIENDS. That’s what makes this so sweet and innocent. I know she will laugh later in life when she sees what she wrote and she’ll probably be embarrassed that I shared it but she’ll get over it!
Now…changing subjects…
I saw one of the best movies I’ve seen in a long while. “Julie & Julia”. It touched me in more ways and inspired me so much! There has always been a love of cooking in our house. Ever since I was a little girl, I have such fond kitchen memories of baking with my Mom and that followed through with Kayleigh. She’s become quite a little baker and her love of cake decorating is in full bloom! This movie combined two of my favorite things….cooking and blogging! I had to giggle when she first talked about blogging and I remember the feelings I felt when I first started blogging (almost 2 years ago). I blogged daily…sometimes twice a day. Over the last few months, I’ve not been as good at blogging because of my carpal tunnel. I REALLY needed that break from all the typing because it was taking a toll and I was in so much pain that surgery seemed my only option but I knew if I left the long blog posts for a bit then I could manage the pain with some meds and then come back to it once these nerves settled down in my wrist. It worked! I’m doing MUCH better with it. Back to the movie…so Julie vowed to blog 365 days and make it through Julia Childs entire recipe book of over 500 recipes. It was so heartwarming and a wonderful movie. If you haven’t seen it then it’s a MUST if you love cooking…or blogging! I giggled when she got her first blog comments. When she finally knew that someone other than her mother was reading her blog. I remember those feelings! It was nice to know that your voice didn’t go unheard in blog world.
Speaking of baking…Kayleigh has been pretty busy with her cakes lately. She got several orders for Valentine’s Day. She’s getting so much practice! She has 2 orders due this week and then she’s got 7 orders for Easter already! Here are a few of the cakes she’s done lately.

Not bad for only being 15 years old! :) She's doing fantastic!

Hope you all had a wonderful day!

Monday, February 8, 2010

When The SAINTS Go Marching

CONGRATS to the SAINTS as they take home their FIRST EVER SuperBowl win!!!

I was glued through the whole game and continued to cheer for the Saints as they pushed through and won the game. I must admit, the emotional moment that Drew Brees shared with his son on the field make me choke up! The commercials were hilarious :) some of the best I've seen yet!

Way to go Saints! You deserve this win!!!!

Lizzie Update

I got this email from Lizzie as an update and my heart goes out to her :(

~~~~~~
jill,
Thanks so much for posting that on your blog! I have a few updates and clarifications for you since we first talked. 1. I have gotten a hold of two paradigm reserviors that use luer lock sets so last resort I could reuse those for a while since luer lock sets are way easier to come by. 2. I do have a blog, just not a dblog, www.ailoveineverimagined.blogspot.com in case you or someone else is interested in hearing a little more about me. 3. I'm not eligible for any kind of government assistance. I was emancipated from my mother when I saw sixteen (long story) and that forfetted all my rights to any government assistance programs. 4 my daddy passed away thursday night just 24 hours shy of his birthday.

thanks so much for your help!
lizzie
~~~~~~

Lizzie~
You are in my thoughts and prayers as you move forward without your Dad. (((HUGS)))

Sunday, February 7, 2010

Test Strip Pics Go Green!

I've been meaning to share this for a while now and since we're snowed in and Kacey is going to start working on test strip pictures again, I feel like it's time to share it.

A few weeks ago, I was contacted by a blogger I'd never met before. His name is Ron and his blog is The Poor Diabetic. He sent me the nicest email asking more information about the test strip pictures that Kacey makes. He was doing a blog post about "Going Green" and wanted permission to write about her. I was dumbfounded! OF COURSE you can write about her!

You can read the article--- HERE!

Thank you Ron for such a special post!

Saturday, February 6, 2010

D-Community Help

I received an email that really touched my heart and I thought I'd share it with the D-Community in case anyone could help. Unfortunately since we use Cozmo, we're of no help to Lizzie. She uses a MiniMed 512 insulin pump. She doesn't have a D-blog but she does read several of our blogs. She's from Kansas and I just felt like I needed to share this in case anyone out there was able to help her.

~~~~~

Jill,

I've been reading your blog for a while now and I have just found it so encouraging. I am a college student and I was diagnosed when I was 6. I have been under my dad's insurance up until two weeks ago when my dad lost his insurance. He has been unable to work for the past 6 months due to stage 4 cancer. As a college student, my funds are very limited and I was wondering if you know of any resources to help get me buy until I figure something out. I am currently pumping and trying to avoid going back to shots at all costs. I'm certainly willing to if it come down to it, but I thought I would try reaching out to the d-community for possible suggestions first.

Thank so much,
Lizzie Poe


~~~~~

If there is anyone that is able to help her, please feel free to email me @ mom2knkc@inna.net and I will put you in contact with her.

THANK YOU!

Thursday, February 4, 2010

New "Pricker"

Over the last few days, Kacey's lancet--or "pricker" as she calls it-- has started to act up. It was getting harder and harder to press the button and once she pressed it then sometimes it wouldn't even stick her finger. I had several boxes of glucose machines since my sister-in-law works for Endo. She got her hands on several different ones for us just to keep as spare back ups. You never know when your glucose machine is gonna die and you need one. So I pulled out the One Touch, Accu-Check, Accu-Check Aviva, Contour and Breeze 2.

The One Touch lancet was very similar to the Freestyle ones. She's been using the Freestyle machines since she was diagnosed. In the hospital, they gave her the Freestyle Lite and we used that until she got Herbie and there is a Freestyle machine attached to Herbie so that's what we've always used. She had 4 lancets, all the same thing. Over time, two of them stopped working so she was down to two. She carries one in her purse that she takes everywhere with her and then we keep one at home for testing in the house so she doesn't take her lancet out and then leave the house without it (she's done that before!) Last night, she came to me and said "Mom, I think my pricker is broke." She kept trying to push the button and it wasn't working right.
I set the One Touch box aside and opened the Accu-Check. That one was connected to the machine so that wasn't gonna work. I opened the Accu-Check Aviva and that had a Multi-Clix with it. I was thrilled because I'd wanted to get her one of them after hearing everyone rave online about how nice they were. Whew! I'm glad I didn't buy one! She didn't like it at all. Not because it hurt but because it was bigger and made a loud --CLICK!-- when it released. It startled her when she pricked her finger and she said it reminded her of the ones they used on her in the hospital. She didn't like the push top and small button to press. After all, she's only gonna be 10 years old and she has to use whats comfortable for her! We set them aside and I opened the Contour. Ohhhhhhhh! Her eyes lit up! It was a lancet like she'd never seen before. It was different, it was new, it used the lancets she's used to, it had a small end where she could see where on her finger she was placing it and most of all...she was excited about it!
We took it out of the plastic and she ran to get a new lancet. We loaded it and I watched her stick her finger....not once...but TWICE with it! Just to see how it works.

It's called a Microlet 2. It's small and thats what she likes about it. That small little it so much easier to see where you're going to stick your finger. Another nice thing is on the tip there are little blood drops. One small, medium and large. There are no numbers! I remember Kacey getting so upset when we had to move her lancet number from a 1 to a 3 because her fingers were getting tougher. This shows the drops so there are no numbers to upset her. She tested with the small drop first and didn't get any blood. I'm guessing thats about a 1-2. Then she used the middle drop and got a perfect drop. So thats probably a 3-4. She laughed and said she didn't need that large drop! ;)

When I opened up the Breeze 2....there was the SAME lancet!! So we replaced the one in the house and the one in her purse with new ones. She was so excited! Sadly, I wasn't feeling the same thing. I was happy that she found one she liked but it made me really sad to watch her prick her fingers 6 times trying to find out which one she liked best and then it not phase her at all that she'd just pricked her fingers that many times. Like my D-Mom's said on FB...it's "Bitter-Sweet". In the end, I'm just happy that she's happy. It's like a "new toy" and the excitement of trying something new for a change.

I'm anxious to see how long these hold up? On an average...we've had these lancets last only a year. I guess thats good considering they get used 10-12 times a day! We will see!

Wednesday, February 3, 2010

Where Have We Been?

Holy cow! I can't believe it's been 2 weeks since I've blogged! I know that I've kept most of my D-Moms updated by Facebook but I guess it's time to catch everyone up here on whats been happening!

My carpal tunnel has been acting up again and thats been keeping me from typing too much. I had that EMG done a while back and they tried to talk me into surgery but I just wasn't ready! I've already had CT surgery on my left hand and I know how difficult that was and so this is my right hand that needs to be done and I'm a dominant right handed person so I am NOT ready to go through all of that right now. The only way to get it to settle down is to take a break from all the typing ;)

Virginia got slammed with snow last week. We got 9-11 inches of the nasty white stuff! It completely shut down our county for a few days and the kids have been out of school since last Friday. We're hoping to get back in the swing of things tomorrow. All that being said, the girls were THRILLED to see all the snow and Kacey couldn't remember playing in snow this deep so she had a ball. I posted pics on FB for you all to see.

Frankie started his new job on Monday. W-O-W! What a difference it makes! A difference in attitude was the best part. He said it's NOTHING like the company he used to work for and thats in a good way. He said they aren't yelling at him all the time and they aren't blowing up his phone. Then when you drive 34 miles to work vs. driving 78 miles to work (ONE WAY) ...it makes a HUGE difference!

Yesterday was an exciting day at our house! I took Kayleigh to get her belly button pierced. OUCH! Well I say "ouch" but Kayleigh said it didn't hurt at all :) She's still so skinny and petite so it looks so dang cute!

Things are pretty stable on the diabetes front. The new ratios and basal changes seem to be working. She's had a few lows but nothing under 50 so it's ok. LOL I say that like 50 is an ok number! She feels the lows long before the 50's but we just deal with them, right?

Been thinking alot lately! This time two years ago, Kacey was getting really sick. She had a cold we couldn't get rid of and her teacher was on her about leaving the classroom to get water all the time. Little did we know, she had her diabetes onset. We're getting close to the 1 year pump anniversary and the 2 year diabetes anniversary. It's hard to believe how far we've come!

Thats all for now. Can't type too much but I'm hoping that once this CT settles down then I can get back in the swing of things. Sorry that I haven't posted to many blogs. PLEASE know I'm thinking about all of you and I'm keeping updated as much as I can :)

Tuesday, January 19, 2010

Results Are In

Today has been more chaos than I thought it would be!

Last week, Kacey's Endo office called to reschedule her check up appointment because on the 18th, there was a conflict with several doctors using the same office at the same time. So the receptionist asked if we could come on the 19th instead. I agreed the 19th would be better because at the time she was going to the dermatology appointment as well and it would only be one lost day of school. This morning, the NP that we were scheduled to see called my cell phone and asked me if I'd like to take one of the appointments at the Newport News office (40min drive) tomorrow instead of the Norfolk office (1hr 30min drive) today. Ummm....NORFOLK OFFICE?!?! We changed appointments and they scheduled us for the wrong office! :( I'd already taken Kacey out of school for the day and so we decided to keep the Norfolk appointment and just make the drive. This meant we had to rush around because it was already 11:30am and we still needed to get ready!

We made it to the hospital at 1:42pm....the appt was at 1:45pm!! Whew! I got Kacey registered in and we only waited about 5 minutes before they called her back. Why, oh why, did I have this knot in my throat? I knew her A1c had gone up but I wasn't prepared for HOW MUCH! They took her stats...everything perfect. Her height and weight are in sync and there's nothing to be concerned about. She's growing fine and developing as she should. This is the first time the nurse gave Kacey the clip board and asked her to answer the first 3 questions at the top by herself. WOW! Kacey was so excited to do a "big girl" thing. Here are her questions and answers...
We sat and looked over her pump settings and she tweaked those overnight basals some more because I'm still correcting those 2am sugar checks. She said her sugars during the day are wonderful compared to what they were prior to the carb ratio and correction factor changes so we're going to leave those alone for now. I did ask to speak to someone in more detail about using the Extended and Combo dosing. We've been at this pump thing for almost a year now and we always use the straight bolus and when she eats the pizzas and pastas, her numbers are out of control and I think thats whats causing her to keep those highs. We were thrilled to hear that our favorite CDE was working and she popped in to see us. She sat with us and explained how to use those boluses in more detail and I think I'm confident enough to start using them.

The results of her A1c..... 8.6%

YUK!! I'm so disappointed! I know I shouldn't be because I couldn't control what happened to her body the last month, but I am. I tried not to let Kacey see how much it upset me. Our NP explained to Kacey that she went through ANOTHER growth spurt... 1/2 inch so she's now 56 1/2 inches tall and she also started her period so that made her hormones go crazy and so it was expected for her A1c to go up. She told us we were still doing a great job and to keep testing and trying to keep her sugars as in range as we could. ***sigh***

Before we left, we had to go to the lab for more bloodwork. We stopped off at the restroom first because Kacey was so nervous that she had to go. When we got into the lab, the first thing they did was hand us a pee cup....HAHAHA! I knew she wouldn't be able to go so they did her bloodwork first and then we tried again. Nope! Nada! Nothing! I tried running the water. I danced around the bathroom trying to make her laugh so she would have to pee....still NOTHING! So we had to pass on the pee test and they'll just have to deal with it ;)

So there ya have it....up ONE FULL POINT since October! We have until May to bring it back down...fingers crossed!