Tuesday, October 26, 2010

Train Wreck

Thats how I feel things have been lately...a complete train wreck! I can never find the time I need to catch up anymore and when I do, it's usually a run on Facebook or uploading some quick pics to share so I don't feel like I've lost complete contact with everyone.

I think this is the longest I've been without blogging since Kacey was diagnosed and I do have good reason but I feel like it's a constant struggle to find that free time to sit and clear my head. How did I ever find it before? Well it's simple...when I would blog through the day, I was a depressed Mommy that was dwelling on the fact that my child had diabetes and I felt like I was constantly battling with myself. So what changed? Well...one little thing called LIFE! I started dragging myself out of the house...spending time with friends, doing things with the girls and pretty soon...diabetes was no longer something I dwelled on. It wasn't at the front of my mind constantly anymore. Sure, we still had our daily struggles but for some reason they were just...normal. Yeah, NORMAL...a word I never thought would be in my vocabulary again! I found that our family was completely settled into a new normal and we were just living life.

Now for our updates...whew it's been a while!

Kacey is doing great! We still have our daily battles with blood sugars but for the most part, she's doing well. Her A1c is finally coming back down and we're not having regular 300-400 range sugars anymore. She's having an amazing year in 5th grade so far. She loves all 3 of her teachers and the year hasn't been as demanding as the last 2 years. Or is it and we're just so used to diabetes now and it's not a battle? I'm not sure! Either way...it's been a great year! She rarely even sees the nurse anymore unless it's for a headache. We will be getting report cards soon so we'll see how well shes actually doing! She got off to a rocky start since she had her surgery only 2 weeks into school and then on Oct 2nd (at her sisters 16th bday party) she fell while running around with pantyhose on and she broke her arm! The same arm she just had surgery on! Other than that, she's doing well and we're thankful!

Kayleigh is having an amazing year! She's got Honor Roll so far and she is just beaming in her Culinary class this year. Having a passionate teacher that pushes her and actually teaches her has really made her blossom and she's found her passion again. It's wonderful to see the smile on her face and see her wanting to prepare the dishes she's made in class. She's reconsidering going to Culinary school after graduation and it just makes my heart so happy! Her 16th birthday party was a HUGE hit. She had a Hollywood theme party and she was very surprised when my brother walked in! He flew in from Hawaii to be there for her. AMAZING time!

As for me...I'm still working in the school as much as I can and then on my free days I'm usually volunteering or actually getting my house clean. It's a daily chore! LOL! I've had the chance to visit with my brother since he has been here for a few weeks with the military. I miss him and his family being close. Time is flying by so fast and the kids are growing up and we're getting older and it's been nice to just spend some fun time with him. He just found out he made Warrant Officer so we're hoping that his next job assignment will bring him back to the East Coast! :)

So now that I've updated...I've gotta share something I'm feeling pretty guilty over. We had planned to do the JDRF walk this year and then when we found out about Kacey's bone tumor, I hit a bit of a depression. I went through a terrible issue of insomnia and actually felt like I was having an out of body experience. I wasn't myself :( I cried. I didn't sleep. I had a hard time eating. I didn't raise awareness. I didn't fundraise. I just exisited. That being said...once Kacey's surgery was over, I was left with the "OMG! I still have a 16th Bday party to finish planning and carrying out." and I went into party plan mode. Once again, not thinking about the walk. Then, Kacey broke her arm at the party and that threw a monkey wrench into things. October crept up fast! I got a call from the JDRF coordinator. "Hi Jill! This is xxxx from JDRF. I'm just calling to make sure everything is OK because last year you all had the biggest team in our area and raised a huge amount of money and this year you're not registered." OK ***tears*** THAT made me feel even worse! Yeah I know we had the biggest team but somehow that thing called LIFE got in the way again and I just couldn't juggle it all myself. So, we didn't walk :( Last Saturday was the walk and to keep from more tears, I drove the long way around so we didn't drive past it. Sure, I could have shown up with just our family and walked. But the guilt of not raising the funds or the awareness over the last few months really got to me. I explained to Kacey WHY we didn't do it. Sometimes when you try and be SuperMom, you just can't do it all! And I might be a SuperMom but this time....I failed. So...theres always next year, right? :)

Also, I wanted to express my deepest sympathy to the family of the little girl that just passed away from diabetes complications. I can't even begin to imagine the greif you're going through right now but I pray that God will lay his hand upon you and you will find peace. Sending you love and hugs from VA. <3 RIP Sweet Girl E <3

Friday, September 17, 2010

Kacey's Surgery

Now that things have calmed down a bit, I think I can finally blog about everything.


I've shed more tears and gone more sleepless nights the last 2 weeks than I ever did when Kacey was diagnosed. It's a scary feeling to go 36 hours with no sleep and still function and wonder how you got through it. But I did! I had a serious issue with insomnia. I'd lay in bed and a million things would run through my head and I would have to get up and do something around the house. Being a Mom is NEVER a worry-free job and in order to take all the worry from Kacey, I had to do it silently! She never once saw me cry over this until she was being wheeled down to surgery. I didn't want her to think there was really something wrong. As far as she knew, Dr. D was doing surgery to take out a tumor that was keeping her from straightening her arm. It was better that way!


On Wednesday, we drove to Richmond (1.5 hours away). We had to drive right into the middle of the city...YIKES....talk about scary at night! We got the call from the hospital and they told us we had to be at the hospital at 6:30am. I had several questions and the nurse assured me I'd be able to ask them all in the morning because we'd be meeting with an entire team of doctors. ENTIRE TEAM?!?! Wow!


We were staying at a place they had set up for us called the Hospitality House. It's a place to stay while you have family in the hospital for procedures, surgeries and recoveries. They don't charge you anything to stay there but they encourage a $10 per person donation per night. How many other hotels can you stay in for $30 a night? NONE! The staff there were AMAZINGLY nice. They got us checked in by 8pm and we were on our way to the pedicatric floor. It just so happened that there was hardly anyone on the floor. Kacey had the playroom to herself. Frankie and I were able to crash out and watch TV for a little while before going back to the room for the night. Once we got settled back into the room, Frankie went on to sleep and I got Kacey tucked in and then the tears came. The fear of the unknown was in full force. I really hadn't explained all of the procedures to her because I didn't want her scared any longer than she had to be and I knew once we got to the hospital then they would tell her everything. So...I sucked it up and went into some detail about how the next morning was going to go. We talked about anesthesia and how it was going to make her feel and what could happen once she woke up. We talked about the pain. We talked about going into the OR and what recovery would be like. She cried. She laughed. She asked LOTS of questions! (LOL...she reminds me so much of me!) Around 11pm, she got one last sip of water and a small snack and then she was off to bed. Me, well...I sat up looking at the walls til about 2am. The alarm was set for 5:15am but I was awake long before that! We all were! So we got dressed and went on to the hospital.


As soon as we walked in, I heard Kacey gasp. There in front of us were a set of escalators. I couldn't figure out why she was so excited over them and then I realized...we don't have them where we live! She's only seen them on TV! LOL...yeah deprived she is! The receptionist was giggling and told her to go for it. So she and Frankie rode to the top and then back down. As she reached the bottom, she jumped up and down from the excitement.


Then...it was time...up to the 5th floor! When we got up there, it was already packed with people waiting. We registered in and within 15 minutes, we were called back! We walked through the surgical unit and we were greeted with so many smiling faces at 6am. As we walked into the small cubical they called a "room", the nurse told Kacey to put the gown and socks on and then she would be back. Kacey stood there in a somewhat state of shock. She leaned against the bed and immediately burst into tears. Was it something she said? What was wrong? I hugged her and asked her what was bothering her. She began to tell me about how being in that room reminded her of her diabetes diagnosis. I held her tight as she relived that moment in her mind. She was only 8 but the memories of PICU are so clear for her! I made her giggle when I picked up the pack of socks they had for her to put on. I asked her if she thought she could slide across the OR floor with skids? The socks had huge grippies on them...LOL! She got her gown and socks on and in the bed she went. Over the next hour, she was bombarded with doctors and nurses. Many of them asking the same questions over and over...but all of them concerned with giving Kacey the best care possible. She did indeed have an entire "team" that was focusing on just her! Having surgery is difficult enough...but throw diabetes in there and you have a whole new ball game! I'm sooo thankful that we had so many players :)


Most of my questions were for the anestesiologist. I wanted to be sure we were all on the same page with things. The most important question being...Can Kacey stay attached to her pump? Her simple answer...Of course! Now, anestesiologists are trained to put you to sleep and monitor you while you're under so I wasn't expecting her to know all about an insulin pump but she was certainly ready for a crash course...and thats exactly what I gave her! Within 20min, she knew what she needed to to get Kacey through the next few hours. I set a 20% basal decrease as ordered by her Endo. When we got to the hospital, her blood sugar was a 266 and then by the time she was getting close to go back she was a 186 with 1u of IOB. I knew she was gonna fall even more so it worked out perfect! We were also assured that during the surgery, they would be taking blood straight out of the IV instead of pricking her fingers and that way it was easier for them too! I breathed a sigh of relief knowing that she was in wonderful hands...not only one ansestesioligist...but TWO! One would be watching her while she was under and taking care of things from that end and the other would be managing her diabetes while she was under. How cool is that?!?!


Then....Dr. D came in...bright eyed and cute as ever! He was all smiles checking back over to make sure the "team" had done everything they needed to prep her for him. She held her hand and told her he'd see her soon...asked us if we had any other questions...and then he was off to prepare for her arrival. Within about 10 more minutes, they'd given her some meds to relax her but she was shaking and crying. Nerves! When she reached out for me...I'd choked back as much as I could! Frankie and I were both in tears. I knew she was in great hands but I hated to see her so scared and upset. They took her off to OR and we were sent to a window for a pager. If any of you have ever eaten at Applebee's then you know what I'm talking about. Those round pagers that vibrate and light up with little red lights? Yep! Those are the ones! Once surgery was underway, about 30min in, her main nurse called us to tell us that things were going smooth and she went under just fine and was stable. Originally we were told the surgery would be 3 hours and then she would spend an hour in recovery. So once we got that first call, we were free to roam the hospital for meals or gift shopping. I knew I needed coffee for sure! So we went on down to the cafeteria. About 2 hours later, the pager goes off. I freaked! We rushed back up and the nurse put us on the phone. As I was talking to her head nurse, Dr. D walked out. My heart shot up in my throat. He was smiling so I knew things were ok. I told the nurse that Dr. D was out and so she let him explain everything. He took us back to a meeting room and told us surgery went amazingly well! He found a place on her arm that he could cut so when he got inside he wouldn't have to cut through the muscle, he just parted it like a curtain. That saves for healing too! He took out the tumor, hulled out all around it to be sure it doesn't come back and then he filled it with bone wax. She would be in recovery for about an hour and then they would bring her back to the step down room for us to see her and then once she was stable there, we could go home! He was very pleased with how things went.

The next hour was the hardest of them all! I paced the floor until I heard them call us. We rushed back to an empty room. The nurse explained that they were bringing her from recovery and we'd see her soon. Within 5 minutes, she was back! She was all smiles and the nurse said as soon as she woke up, she said she was hungry and wanted to eat. Not a single bit of nausea or vomiting! YAYYYY! She'd captured the hearts of the nurses and had them all talking while we were waiting. We spent another hour in there and since blood sugars were great and she had eaten two popscicles and was ready for food...she was discharged! Talk about a sigh of relief :)

Once we got home, I got her settled on the couch. She went on to sleep again but around 10pm, the meds they'd given her had worn off and she was in a lot of pain! She had a precription for pain meds but they were only taking the edge off for about 2.5hrs and then she'd start feeling it again. So it made a longggggg night!

Today was a little better. She was still in a lot of pain but she was able to rest more. I was able to finally get her up to change her and give her a "bird bath". Today was site change too so once we got through all of that, she layed back down and she was out for the evening. I was happy to see her resting.

Blood sugars...well they were great for surgery but they've taken their toll the last few hours...hitting the over 500 mark...YUK! I'm guessing since she's laying and eating then there really isn't a choice! I've got tons of pics to share on Facebook and I will upload them when I get a chance.

Thank you all for your continued prayers...love...support...and kind comments on Facebook. I read them to Kacey today and she was so greatful for them all!

Friday, September 3, 2010

Baby Blues Look GREAT!

The girls had their annual eye exam last week. This was our first time with this new eye doctor and I couldn't be more pleased! He did a complete diabetes eye exam on Kacey and said he would continue to follow her each year to make sure those blood vessels are staying perfect. Since we only have a 2 year history, her baby blues look perfect! She has had some change in her glasses prescription but nothing too drastic. New glasses coming soon! :)

Tuesday, August 31, 2010

How Do You Spell Relief?


Yesterday was the big visit up at VCU Medical Center. It took us about an hour and a half to get there. Pulling into the parking lot was very emotional for me. I choked back tears and tried to smile. But when you see a sign with the word "cancer" in it, it's hard not to feel those overwhelming feelings of worry! When we stepped foot into this place, I don't think I've ever been greeted by a more caring and compassionate group of workers, nurses and doctors. As we sat in the waiting room, the tunes from a keyboard came pouring out from one of the other waiting rooms. We peeked around the corner to see a smiling man sitting to the side with a huge keyboard and he was happily bouncing his head as he played. My girls had the biggest smiles on their faces and that actually caused me to smile. How wonderful this was! Here is a man volunteering to sit in a waiting room to play some upbeat happy tunes to take just a bit of the edge off about being there. Worked for me!

So we get called back by a wonderful nurse. She joked and smiled as Kacey told her what was going on. She assured us Dr. D would be in soon and she left out. About 5 minutes later, a knock and then in walked one of the cutest smiling docs I'd ever seen! He took Kacey's hand in his and said "Well, you must be Kacey". I think if she could have fallen off the table she would have! He introduced himself to her and then had her introduce all of us. He didn't start his conversation with "Why are you here?" or "What's wrong with your arm?" He started it with "So how has your summer been? Done anything fun? Are you ready for school? What grade are you going into? Are you an Honor student?" The last question made me giggle because she answered "I get A's and B's" and he said "Do your parents punish you for those B's?" and she got this shocked look on her face and she said "No they don't but they don't want me getting a C" and he says "Well, remind me to have a talk with them after this because you need all the A's you can get!" and then we all laughed! Talk about taking some edge off...wowwwww! So then he started moving her arm around, asking her questions about it and then pulled up her MRI results and Xrays. It was definately visable and he said he wanted to make sure it was what he thought it was so he asked us to excuse him so he could consult with his Radiologist, who happens to be one of the best in the state of VA. (wow! I heard he was the best Ped Ortho Oncologist too!) So about 10 minutes later, he came back and said it was exactly what he thought it was. Benign Osteoid Osteoma. All I heard was the word BENIGN! He said it is not what the other doctor thought it was and he wrote it down on a piece of paper and told me to google it. WHAT?!?! Good grief...I did that with what they thought it was and ended up reading all about cancer. And now hes telling me I can go read about it?!? He went on to pull the MRI back up and show us what it was. He said it's a tumor growing on her bone and the bicep tendon that runs right beside it is rubbing against it and thats what causing her pain. He wanted to be 100% sure that was what it was though so he wanted her to have a CT scan done. Great! More weeks of waiting! So I explained that we drove 1.5 hours to get there and making the trips were costly for us. He told me to sit tight for a second. The nurse came back in and asked us to come with her because he'd gone back to Radiology and told them Kacey needed a CT scan done STAT. Wowwwww!! Within 20 minutes, she was in CT scan and then while she was in there Dr. D called them and told them he could NOT wait for the results, he needed those STAT as well! I wanted to cry! Here was a doc pulling strings to save us from having to travel and pay additional co-pays! About 30 minutes later, we were called back to review the CT scan. He pulled it up and showed us where the tumor was hulling away the bone. Only option....surgery! Kacey started to cry and he explained that it was a tiny incesion in the top of her arm. He'd make sure she was completely comfortable before he started. He will go in and scrape out the tumor and some of the bone to make sure he gets it all. There is a 10-15% chance this will come back but he said he's going to do his best to make sure he gets it all. It is a day surgery but you know that when you throw diabetes in the mix there is always a possibility of more crap. So he's preparing us for overnight, just in case. He will call me when surgery gets closer to discuss the plan of action diabetes wise...pump, eating, ect. He is going to try and make her first on the list for 2 reasons...1 shes diabetic and 2 shes one of the youngest on schedule that day. So he took Kacey's hand again and told her he promised she would be back to new soon. Once the tumor is out, she will be able to stretch her arm back out without pain. Her surgery is scheduled for Sept 16th. It is a Thurs and he said she should be well enough to go back to school by Tues if she's up to it. You never know the monkey wrenches we will get afterward with diabetes so we will have to take it day by day. Once he left out, the tears rolled. Can you say RELIEF? Sure I know surgery is still going to make me nervous but knowing that this is something we can take out and she will be fine....makes me breathe a little bit easier!

Just knowing she is in good hands helps me rest a bit more. Her doc is 36 years old and it's obvious he loves his job! He's not stuck in old ways like those older doctors are and its nice to have an official diagnosis.

Friday, August 20, 2010

A Day For Awards

Today must be the day for awards!

After finding out my blog is on the Top 50 Blogs About Diabetes over HERE , I opened my email and read this....


Dear Jill,

Congratulations! Anne here, and your blog, Diabetes Sweeties, wasdetermined to be one of the top resources in the medical field. And so, ithas received our 2010 Top 25 Diabetes Blogs award presented by MedicalAssistant Schools!You can see your name amongst our winners here at:www.medicalassistantschools.org/top_diabetes/#Diabetes_Sweeties

Winners were chosen through a scoring system led by internet nominations,which came from your reader base!You can let your readers know you won by embedding the badge code.

If you choose to accept or decline the award, please let me know.Please do not hesitate to call or email if you have any questions. Manyquestions can be answered atwww.medicalassistantschools.org/top_diabetes/about/.

Again, Congratulations, and I hope to see your badge soon!

Cheers,

Anne Holt


Wowwww! Thanks everyone! And like I said before, EVERY single one of us that blogs deserves an award because we all touch someone in one way or another by sharing our experiences. YOU ALL ARE THE BEST!!!

MRI Update

I've been MIA the last week because I haven't been able to bring myself to blog about whats going on. Not that I haven't thought about it. It just seems that I can't type out what I want to in fear of it being so true. Call it denial....yes!

I'm going to try not to drag this post out because right now I still can't see through my tears. I've cried more the last 2 weeks than I did when we were told Kacey had diabetes....and that was TONS of tears! My eyes are puffy...my heart is heavy...my brain won't stop running in fast forward and my body is completely exhausted but my brain won't let it rest. I'm lucky if I've slept 2 hours each night and finally last night I took something to MAKE me sleep. (Thanks Frankie for doing 2am check for me) I slept from 8pm to 6am and never budged!

Alright...this is what we know. NOT as much as I'd like to know but we're taking it as it comes at us. On Monday when Kacey had her MRI, the nurse told me the ortho doctor would have the results by Tues morning. So on Tues morning, I called the doctor and they hadn't gotten them yet. So by 4pm I called back and the nurse put me on hold. The had originally made an appointment for Kacey to have a recheck on Sept 15th. She came back on the line and said, "Do you think you can come in on Thurs at 10:45am to discuss the results of her MRI with Dr. Chris?" I paused for a second and said "Is everything ok?" She paused and said "Yes we just need for you to meet with Dr. Chris." So we booked the appointment and it was a waiting game. I was so sick at my stomach. Why? Well because if everything was normal with the MRI then they would have just said "Her results were fine. Come back on the 15th for a recheck" My brain went into fast forward! When we were at the hospital for the MRI, I had taken a peek at the doctors orders while we were waiting. BIG MISTAKE #1. He was looking for a "proximal humerus lesion". BIG MISTAKE #2. Googling what that was when I got home!

Thursday came and I was a mess. I had barely slept and looked like shit! Can I tell you how much I love Dr. Chris? He was the one who casted Kacey when she broke her arm last summer. So it was nice to be able to see him again :) I just wish it wasn't under these circumstances. He came in the room with 2 of the MRI pics printed out. He said there is definately something there but he's not sure exactly WHAT it is? Typically if it was cancer, on the MRI it shows up as a round thing with spikey things coming off of it. This does not. Typically, a lesion is found in leg bones. This is not. This is a wavey round thing and its in her upper arm bone and it's causing her severe pain that shoots down her arm. Bottom line, he's not sure what it is? He said we had 2 options: OPTION #1. We can leave it alone, see if it gets better, re-xray it in 6 months and see if its any bigger. OPTION #2. He will refer us to the best Pediatric Orthopedic Oncologist in the state of VA. WAITTTTTTTTTTTTTTTTTTT!!!! Did he just say Oncologist? YES. HE. DID.!!! If I could pass out right then, I would! Can I puke? Ummmm....I can't even cry!!! I can't scare Kacey! I can't scream! I can't even talk!!!! So he went on to explain to me that he didn't feel comfortable leaving it alone and if she was his daughter then he would opt for the Oncologist and they would be able to tell us what is was for sure. OK...was this his way of letting us down easy so we didn't freak out? Did he not want to say it was the C-word? Could he see the worry on my face? YES he could! He looked at me and said "Mom, I know it's hard not to worry but if this is cancer then it is not going to grow as fast as I think it might in just 2 weeks. He said it would take about 2 weeks to get in to see this doc up at MCV. The made us the appointment while we were there....August 30th. That seems SOOOO far away! In the meantime, we try and stay sane and go about normal daily life.

How is Kacey taking things? She doesn't know what they are really looking for. She just knows she is going to a doctor that specializes in the pain she's having. Thats all she needs to know! The last thing I want is her worrying! We did manage to fill Kayleigh in on whats going on. She cried. But we wanted her to know why we were so upset and that we were going to need her to take up some slack with the chores.

PLEASE keep Kacey and our family in your prayers. I'm not sure what news we will be hit with on Aug 30th but I will update as soon as I possibly can. I'm preparing for the worst but hoping for the best! I just feel like I'm at rock bottom right now and I'm not sure how much longer I can do this unmedicated. Hey...don't we have some D-Moms on some good meds? LOL! Geesh...if I don't laugh then I'm gonna cry some more!!!

On a good note, I love hearing about and seeing all the blog changes. Forgive me for not updating my blogroll...I will...just too much on my hands right now to do it. Once things settle down and I am not so stressed, then I will update and add. So please don't think I'm not seeing them and I don't care...I REALLY DO!

Also, some pretty amazing news that Wendy from Candy Hearts Blog shared with me yesterday....Diabetes Sweeties was named one of the Top 50 Diabetes Blogs over HERE. It is an HONOR to be named but there are so many more that deserve recognition than the ones named on that list. Each and every one of you bloggers have a special place out there and I'm truely thankful to call you my FRIENDS! Wendy, thanks for spotting this out and thanks for being a sound board for me when I got the news. If you all haven't been over to Candy Hearts Blog yet, please jump over there and register for the most amazing contest that Wendy has going on! She made all kinds of pretty changes to her blog! Happy 2 year Blog-aversary Candy Hearts!!! :)

Friday, August 13, 2010

Smith's Medical/Cozmo,
If you happen to read this after you get the box with Herbie in it and find my blog address, please know that the following pictures show the process from Herbie to Goober. It's been a very emotional week for my daughter Kacey. The pump that you got back was her very first insulin pump. He holds SOOOO much sentimental value for her. I know that there will never be another Cozmo pump made and in March 2012 all warranties will be out of date. Herbie cannot be fixed. He cannot be used as a pump for her anymore. He's no use to anyone but he's a VERY important part of Kacey's life. Her best friend. I don't know what happens to those broken pumps that you get back? I don't know if you pop them open and take out the insides for other pumps? But what I do know is....if there is anyway possible to get Herbie back...we'd LOVE to have him! He can't be hooked back up and used as a pump but he can be placed on her shelf as a forever friend. I know some people think we've probably gone insane and lost our marbles because we made Herbie a "person" but when you have a young child trying to accept life with diabetes, you do what you need to do to make it through daily life. You can keep the computer part of him if that is what you need. She won't ever know that is missing out of him. So I ask you to please consider this. We'll forever be greatful!

Thank you so much!
Jill ~ Mom to Kacey
Getting the package and opening it up...holding Goober for the first time.
The reality hits! She knows that it won't be long and she has to disconnect her best friend :( My heart ached for her!

Comparing Goober to Herbie...two pumps...identical...but two different sentimental values!

Goober vs. Herbie

Time to say goodbye...yes...I finally had to pry Herbie from her hands. One of the hardest things I've ever had to do as a Mommy. She was sooooo connected to Herbie and it broke my heart to have to take him from her.

Herbie's crack ...LOL I did make Kacey giggle when I said I needed to take pictures of "Herbie's crack"

Delivery stopped...it felt like Herbie's heart had stopped :(

He's officially gone :( Pump stopped and cartridge was unloaded.

A few hours later, she'd finally settled down and started finding a new found friendship for Goober. No, he wasn't a "Herbie" but he was walking in the same shoes and keeping her alive and for that...we're VERY thankful!

Poor Chloe didn't know what was going on and she was so upset that Kacey was crying. Kacey reassuring her that she was ok :)
Today was a better day. The basal changes we made have kept her in 90's-100's except for one low of 62 this afternoon. She only cried once and that was when we moved the box Herbie was in. We haven't boxed him up to send him back yet but that is happening on Monday. So I'm not looking forward to it!
Some other news... Last week, I took Kacey to see her regular doctor because she was having trouble straightening her arm out. As far as I knew, she hadn't hurt it by a fall or accident. The day we left for vacation, she woke up and she said she couldn't straighten out her arm. I passed it off as "Ohhh well you probably slept wrong on it." and I gave her some Motrin. The whole time we were on vacation, she complained. So when we got back, I made her an appointment. When I took her in, it had her doc puzzled. He said he wasn't sure what was going on and he sent us for xrays. The next morning, I got a call from the nurse that said "There was no fracture or break but a spot on the bone was noted and an appointment with orthopedics needed to be made." I felt like I could puke! I called them back and made the appointment with the same doctor that Kacey saw when she broke her arm. She loved him! So last Thurs, we went to see him. He looked at the xrays and examined her arm. He said the tightness in her arm was most likely bicep tendonitis from some sort of injury she had but didn't tell me. She's got a very high pain tolerance so who knows when she hurt it. So then he said "Now...about this spot" I got a lump in my throat. He said he was very concerned about it. If she was 80 yrs old then he wouldnt be so concerned but he said he didn't like the look of the spot. So he walked over to Kacey and pressed on her arm where the spot was showing and she came up off of the table in pain. He shook his head and said "yep, we need it checked asap". I asked him what "that spot" meant? And he handed Kacey a copy of the xrays to distract her and he turned to me and said "we just need to rule out any kind of cancer or abnormalities". RULE OUT WHAT?!?! That C-word swirled around my brain like a Kansas tornado! So then he explained the process of a MRI to Kacey and explained that there was a possibility she might have an IV of dye that would show up the spot and so they could see why she was hurting so bad. Kacey was surprisingly calm and the whole time I wanted to bust into tears but I had to hold it together so I didn't scare her. It's been a week since that appointment and its been a LONG FREAKIN WEEK! Between that and then the stuff with Herbie, I've just wanted to crawl under the covers and not come out :( but then who would I be hurting? My girls! So I've stayed strong...I've NOT announced any of this on Facebook...I've only told Frankie, my Mom and my best friend about it because I didn't want Frankie's family thinking that Kacey was on her death bed like they did when she was diagnosed. I don't want anyone to know anything until I know what exactly "that spot" is. So why did I blurt it out here? Because this is my blog and I can't keep these feelings bottled up! I have this blog to vent and open up and I NEED IT or else I'm going to need some form of medication to get through this....which BTW, probably wouldn't be a bad idea! So we go Monday at 3:45pm for the MRI.
Then...yesterday we got some pretty freaking amazing news! I checked email around lunchtime and there was an email from Kay's guidance councelor in there. I opened it and it was asking for her to call her councelor as soon as possible about her schedule. UGH! Great! So Kay called her and she asked Kay if she was still interested in taking Culinary 2? Remember, Kay had dropped it because of the teacher. She was going to take Photography, Banking & Finance and Business Management in place of that Culinary class. So Kay paused for a moment and she said they got a new Culinary teacher and wanted to offer the class back to Kay. You would have thought Publishers Clearinghouse had just showed up with a million dollar check for her! She started jumping around and screaming and ultimately said OMGGGG YESSSSSSS!!!!! So, Kay WILL be able to finish her 2yr Culinary degree :) THANK YOU GOD FOR ANSWERING OUR PRAYERS!!!! Kay has been so sad about not being able to complete her program because of a teacher conflict. Hopefully whoever is taking over the class can catch these kids up and they can actually LEARN something this year!!! :)
So there ya have it! Long overdue feelings out in the open. If you made it to the bottom, thanks for reading! Sorry for being long winded but I've had so much bottled up that I had to let it out or I was going to explode.
Luv y'all!

Thursday, August 12, 2010

Goodbye Herbie

I didn't think those words would come out of my mouth until it was time to upgrade to a new pump. I certainly didn't think it would be as complicated as the last few days have been. I even more so didn't think I'd ever be crying over something the size of a cell phone.

Why the tears? Why are we so upset? Well, Herbie was Kacey's very first insulin pump. So I can see where she'd have some attachments. She waited so long for him, he arrived right after her 9th birthday and from the moment he was in her hands, it was love at first site! But why am I so sad? Well, this is a piece of equipment that I've trusted for the last year and a half to keep my daughter alive. He's become like "family" to us. For the last year and a half, I've found myself thanking him in the middle of the night...cursing at him when she was high...and feeling blessed when he showed us some good numbers. I guess I do have a reason to be sad right along with her.

Today, the new pump arrived. It was delayed a day due to some bad weather in PA. UPS showed me this:

PHILADELPHIA, PA, US
08/11/2010
4:16 A.M.
ADVERSE WEATHER CONDITIONS / THE MOVEMENT OF THE PACKAGE WILL RESUME AS SOON AS THE WEATHER CONDITIONS ALLOW

Around 11am this morning, the box arrived. She wasn't too excited to open it but it was something we had to do. She took out the new pump, looked at it and then layed it back in the box. Then came the tears! Those uncontrollable ones that she couldn't stop. I hate seeing her this sad. I figured it was best to try and just get her mind off everything and let her settle down before we tried putting any settings into the new pump. So we went to Walmart and got some groceries. After lunch, we sat back down and I told her "it was time". We opened the box back up and took out the new pump. I uploaded all of Herbie's settings into the software and then I downloaded them to the new pump. There I sat...two pumps...two identical settings...and it was time to hook up to the new pump.

Kacey and I both cried as we did the site change. It wasn't the loud crying...just those silent tears and neither of us spoke. She sat down in the chair with Herbie in her hand and continued to cry. I connected her to the new pump and within seconds, he was filling Herbie's shoes. Just...that...simple! As she looked down and him and cried, she looked back at me and said "Mommy, I'm going to try and get him back one day." I wasn't sure what she meant until about 30 minutes later when she came to me with a letter. As I read the letter, I cried all over again. Could this be? Could this happen? Is it possible? We won't know until after they get the box back. In case you're wondering... this is what it said....

Dear Smith's Medical and Cozmo,

My name is Kacey. I'm 10 years old. I got my pump when I turned 9 years old. Herbie (my pump) was the first pump I ever had. He was the best. I love him so much. I know no more Cozmo pumps are being made. So if you're going to throw him away can you please send him back? I didn't want him to crack and I'm so sad. :( I would like to put him in a glass box and keep him FOREVER. Thank you so much.
Love,
Kacey

Now, if you weren't crying by now...you should be! A sad child begging to keep her very first pump. UGH! So yes, I'm going to put this letter into the box with Herbie. I'm adding my blog address at the bottom. And let's hope and pray that Kacey gets the closure she is asking for.

So..... ~~~drum roll~~~
Allow me to introduce you.....

IT'S A BOY..... Welcome "Goober" to our family!

It's been over an hour since she's been connected. The tears have settled a bit and she just came in to me and said "Mommy, I think I'm going to be ok." ***sigh*** "Yep! You sure are! Goober is going to fill those shoes and take care of you the same way Herbie did and you're going to love him the same...maybe not as much...but he will be loved for sure!"

So today we say... RIP Herbie! We love you!

**Pics to come soon!**