Tuesday, February 17, 2009

Update- Dr. Visit

I've been a ball of nerves all day.

I took Kacey into the doc. She was still crying with stomach pains. I'd finally gotten her to eat 5 crackers and drink some Crystal Light but she was still saying she had to throw up. The doc came in and he talked with us about her symptoms and his initial thought was her appendix but when she showed him where the pain was he ruled that out. His second guess was possible stomach bug. He was a bit stumped because there was no fever or loose bowels...in fact...it was just the opposite...hard for her to have a bowel movement. And then he asked me a question that really rocked my world... Has she ever been tested for celiac? I immediately felt a rush over my body like when I was told (by the SAME doc) that she had diabetes. I replied with a simple "No" and asked if he really thought that was a possibility? He said if it's not celiac then he'd call it a stomach bug but only a blood test would rule that out. So he had the nurse take 2 tubes of blood... one for a simple blood test to see what her levels are and if there is anything going on there...and one for the celiac test. (BTW, Wendy you came to my mind immediately!) I won't know any results until Friday/Monday (which really sucks!) Then I asked about "Sugar Sick" and he assured me that it was NOT all in Kacey's head LOL! He asked me, "Would you drink a glass of apple juice if you've been sick at your stomach with the flu?" Eeeekkk! NO! He said that people with diabetes can get really nauseous with a low and trying to drink juice with a sick stomach just makes them want to puke even more! (makes sense!) So he said to just keep doing the glucose tabs and stick with those since they work.

So for now he said to just give her Gatorade diluted with water to keep her hydrated. She started to cry and told him that Gatorade made her "sugar sick". So he suggested trying the Crystal Light with electrolytes. So my Mom stopped and got her some and brought it home for her. She did manage to eat a few more crackers and drink the Crystal Light but all she's done is lay around like she had NO energy. Still NO fever, NO loose bowels, NO ketones, NO appetite and grumpy as hell (LOL!).

Please keep us in your prayers and pray that it's only a stomach bug!

BTW, I just wanted to express how thankful I am to have my Mom. She's been there for me through every up, down, twist & turn and she's been such a support for me, not only though Kacey's diagnosis but my entire life. She never once turned her back on me ....even when I was only 18 and told her I was pregnant with Kayleigh. She just said, "What's done is done and now we deal with it!" and thats the same attitude I've carried with everything thats ever happened with us. I've faced it head on and not layed in a pity party. We've made the best of what we were given and smiled while doing it. She was sick this past week and I've been so upset about not being able to help her because taking Kacey around someone that is sick is a recipe for disaster. So we've kept our distance and I've called lots to check on her. We missed our Saturday morning breakfast date and the girls were really lost because we do that every weekend with her. Yesterday she was feeling better and so I went to her house to help her sort some things in her closet. While I was there, we ran across tons of funny pics that I'd forgotten about taking. Pics from when me and my brother were little and being silly. It was nice to get the chance to help her and give back to her what I could NEVER repay her for... the time, love and devotion she's given to me the last 33 years. I seriously don't know what I'd ever do without her! I called her after I walked out of the doctor's office today and I broke down crying with the possibility of being diagnosed with another serious illness. She immediately said, "We will take this each day as it comes and we will deal with it like we did with Kacey's diabetes diagnosis. We'll make it through, just like we did last year." And you know what.... WE WILL! I look back on how far I've come since July 2008 and I thought back then it was the end of the world as we knew it....and now here we are. For now, I'm going to continue on the way we've been doing things and wait for the results. But I just had to express how thankful I am to have my Mom!

Worried!

***Warning*** This post contains vomit so if you get queezy reading about vomit then please pass.


I'm REALLY worried and I've got another 20min before the doctor's office opens!

Kacey woke up yesterday morning with a tummy ache. Nothing out of the ordinary for her. Her BG was 169 so thats not really enough to cause the tummy ache (or is it?). We got up and she was looking sluggish. I did my usual "What do you want for breakfast?" routine with her and she replied, "Nothing." Uhoh! So I convinced her to eat a little something, bolused and we went on to my Mom's house to help her with cleaning out closets (I've been promising to do this with her for a long time). When we got there, Kacey just layed around. No energy! I tested her at 10am and her BG was down to a 105. (Yikes! She's falling fast from breakfast!) By 11am, she tells me she doesn't feel good and wants me to hold her. ***red flag*** I immediately got her test kit and her BG was down to a 60! So we decide to take a break and take the girls to Subway for lunch (Kacey's fav place to go!) But before we went, I gave her 1 glucose tab to keep her up enough without overloading her to eat. We get to Subway and she's still saying her tummy hurt. I told her that maybe it was just hungry since she was low. She tested again and her BG was now a 93 (perfect!) She got her sub, I did her shot and she took about 4 bites and looked over at me with these big eyes. UHOH! She says she doesn't feel good and asks to go to the bathroom. Since she'd been dropping, I decided to pass on eating and go with her. I thought she was going to puke but instead she just sat on the toilet crying in pain. Constipation? Very possible! Doesn't that make your tummy hurt? Yes! After about 10min in the bathroom we go back out, she tries to eat more and just cries that her stomach hurts. So now...shes got the insulin...not wanting to eat...and she knows that which is probably why shes crying. Shes scared! So I reassure her that if we test often over the next few hours then we can catch any low she may be getting. My Mom had real soda so worst case, she could drink that! So we go back to my Moms and she lays down t watch a movie. At 1pm, her BG was only a 108 (wow!) So she's dropping but she actually had an appetite and asked for rice cakes. The only ones we had were the mint choc mini ones but since she was already feeling bad, I let her eat them. She finished the small bag (15g)....and then I hear "Mommmmmm, I feel SUGAR SICK!"...... WTF?!?!?! She just layed around all afternoon and we left to come home at 4pm. When we got home, she said she was feeling a bit better and wanted a grilled cheese sandwhich for dinner but she didn't want anything with it. So Kayleigh asked to make them and while she was doing that Kacey tested again. Her BG was now a 229...HUH? And then she takes off running to the bathroom. She threw up her sub and the rice cakes. Oh geesh! Now what? She said her tummy felt better since she threw up and wanted to eat. She ate the sandwhich and then it started all over again. She was complaining her tummy hurt. All evening she layed on the couch and cried in pain. (***pause*** Call doctor- got appt for 9:45am this morning) She went to bed and woke up at 5:30am crying in pain again. Her BG was a 197. She said she really needed to throw up. I asked her if she thought she'd feel better if she did. She shook her head yes as she bolted out of the bed. She barely made it to the toilet when she puked. It was ALL liquid. No substance at all and it was a grayish/green with a VERY foul odor. She doesn't have a fever. She's EXTREMELY tired and cranky. And she's complaining of her muscles hurting. I'm stumped! If it was the flu then I'd expect her to have the fever and watery stools. She's got absolutely NO appetite and I have no idea what to do?

I'll update when we get back!

Monday, February 16, 2009

The Life of A Mommy

This was how MY life went just a few short years ago! The time flies so fast...cherish every moment you have with your children and take time to do....SOMETHING! :)
The Life of A Mommy

My husband came home today and saw me sitting on the couch, preschooler on one knee and baby in the other arm. I was trying to turn the pages of a book with the hand that wasnt attached to the baby, while listening to the stove buzzer, which indicated tonights dinner was at the stage between "well done" and "the dog's entree".

My husband looked at me innocently and asked "So did you do anything today?" Its a good thing that most of my appendages were otherwise engaged, as I was unable to jump up and throttle him to death/ This was probably for the best, as I assume that asking a stupid question is not grounds for murder in this country.

Let me back up a bit and explain what led me to this point in my life. I was not always bordering the brink of insanity. On the contrary, a mere four years ago, I had a good job, steady income and a vehicle that could not seat a professional sports team and me comfortably. I watched television shows that were not hosted by singing muppets. I went to bed later than nine o'clock at night. I preferred sex to sleeping in. I laughed at those people that drove half way across the country hauling a tent trailer, screaming kids and a drooling dog and called it a vacation. Now I have become one of them!

What happened? The stick turned BLUE...thats what happened! I traded my Victoria's Secret lingerie for cotton briefs and a firm support bra. Goodbye Garth Brooks and Hello Barney and Big Bird! My idea of privacy is getting to use the bathroom without a preschooler banging on the bathroom door and the baby spinning the toilet paper from my lap. And I finally understand the term "Stay At Home Mom" does not refer to a parent who no longer works outside the house, but to one who never seems to get out the front door.

So, here I sit, children in hand, wondering how to answer my beloved husband. DID I DO ANYTHING TODAY? Well I think I did, although not much seems to have gotten accomplished. I shared breakfast with a beautiful little girl. Of course, the breakfast consisted of a bowl of Cocoa Puffs and leftover cookie crumbs found between the sheets. This beautiful girl is about 34 inches tall and only gets excited at the site of purple dinosaurs, baby dolls and french fries. I got to take a long relaxing stroll outside. Of course we had to look at the pretty flowers blooming and pick a few dandelions along the way.

I successfully washed one load of laundry, moved the load that was in the washer to the dryer and the dryer to the basket. The load that was in the basket is now spread out across out bed, awaiting my bedtime decision to fold them and put them away or merely move them to another basket.

I read two or three classics. Of course, Dickens and Shakespeare cannot take credit for these works, as we have moved on to the works of Seuss and Munsch. I dont think I will be making any trips to the adult section of my local library anytime soon.

In between, I dusted, wiped, organized and rearranged. I kissed away owies and washed away tears. I scolded, praised, hugged and tested my patience all before noon.

Did I do anything today? YOU BETCHA! I now understand what people mean when they say that parenting is the hardest job they will ever have. In my LBD (Life Before Diapers) I was able to teach young minds how to divide fractions and write complex sentences but Im unable to figure out how to occupy a preschooler for more than 15 minutes. I was once able to navigate urban streets while talking on the cell phone and looking for a decent radio station but now I cant get the wheels on the stroller to all go in the same direction.

I've graduated from a university, written newspaper articles and won awards but I cant figure out how to get carrot stains out of the carpet. I used to debate with friends about politics but now we discuss the merits of cloth versus disposable. And when did I stop talking in sentences that had more than 5 words?

So, in response to my husbands inquiry, yes I did do something today. In fact, I am one step closer to one of life's greatest accomplishments. No, I did not fins a cure for cancer or forge world peace but I did hold a miracle in my arms...TWO of them! My children are my greatest accomplishments and the opportunity to raise them is my greatest challenge! I dont know if my children will grow up to be great leaders or world class brain surgeons. Frankly I dont care, as long as they grow up to be good people. The are my greatest joys, even though I sometimes cry myself to sleep in frustration. The point is that today I got to watch my children take another step on the great journey of life and I even got to point out some of the sites along the way.

As challenging as parenthood is, it is also equally rewarding because we are using our wisdom, our talent and skills to help forge a new person. It is this person, these people, who in turn will use their gift to create our future.

So every nursery rhyme I recite, every swing I push, every little hand I hold is SOMETHING....and I did it today!

~Anon

Saturday, February 14, 2009

Sugar Sick

Is there such thing as Sugar Sick?
I'm beginning to really think there is! When Kacey drops low, she does glucose tabs because she said the other stuff like juice or skittles makes her "Sugar Sick". I wasn't sure what she meant at first and she describes it as, feeling like she is going to puke because she has too much sugar in her tummy. She's done this a couple times now and I brushed her off...til today! She wanted to eat those candy peeps with her lunch and so we bolused in for them. She ate lunch and then ate the peeps for "dessert". About 15min after she ate them, she said they made her "sugar sick". She layed on the couch and complained of a tummy ache (just like she used to do before she was diagnosed) and she said, "Mommy, I just don't think I can ever eat anything sweet ever again because it just makes me sugar sick!" Is this possible? I'm wondering if since we don't feed her all the sweet stuff anymore, is her body just not used to eating sweet and really making her sick? Or is it all in her head, knowing she ate something with more sugar than she'd normally eat? It's hard to tell!

One of her favorite things to eat before diagnosis was Little Debbie- Zebra Cakes. I went grocery shopping this morning and I was picking up things for their lunches next week and I read the box of cakes- 48g carbs for 2 cakes. So if she ate 1 cake then it would be 24g carbs and she could have one every so often as a special dessert treat. I got them and when she saw the box she held her tummy and made a sour face. I asked her why in the world she did that and her reply was, "Mommy they make me sugar sick just looking at them!" OK...now it was all I could do to keep from busting out laughing! So I assured her that it was ok, we'd let Daddy take them in his lunch. She asked for mini rice cakes instead! LOL!

So for all the diabetics or parents of kids with diabetes....Do you/your child get "Sugar Sick" or is this all in Kacey's head? LOL!

Happy Valentine's Day

Happy Valentine's Day
to you all!
Hope you have a great one!

Friday, February 13, 2009

Dose Change & Party

I had to put in a call to Kacey's CDE today. We had a repeat episode of yesterday this afternoon. Her charted blood sugars looked like an EKG...LOL! She had a low of 57 this afternoon and she had NO symptoms this time. She only tested because she was scared she'd drop like she did yesterday and sure enough....she did! She treated with glucose tabs like she did yesterday and only came up to a 166. Her CDE wants me to change carb ratios at lunch from 1:12 to 1:15 and see if that makes a difference. She did explain that all the physical activity she was having was probably causing it all but we could change that now and see how she did through the weekend. If she has more than 2 lows in one day then she wants me to call the emergency line over the weekend. If she doesn't then we need to fax blood sugars on Monday like we usually do and they will take a look at her week and see what changes they need to make.

I thought for sure she'd be running high today since she was having a Valentine's Day party. I figured the excitement would keep her high and silly me didn't think that she'd be saving all her treats to bring home! She was proud of herself that she saved them and then she said if she had known she was going to drop then she would have eaten them! LOL! Oh well! She got several "candy" treats from friends and one little boy gave her "sugar free" heart peeps. He was so proud of himself and told Kacey that he knew she couldn't have sugar and so he got her those so she could have some too. How sweet! Kacey didn't go into the whole spill about sugar free stuff with him...she just thanked him for thinking of her and making her feel special. I thought that was very grown-up of her :) and she didn't hurt his feelings for going out of his way to make sure she had what he thought she could! This is the same little boy that told his mother he HAD to be there for Kacey at the Walk to a Cure so he could make sure she was ok while she was walking. This kid has a heart of gold! And do you know...his mother made it a point to bring him so he could walk with Kacey that day and he missed out on another family event to be there with her. Thats what I call a true friend regardless of gender! Her teacher said that she had a hard time walking up and down the candy aisle and instead of doing candy for the class she decided she was giving them all "Free Homework Passes" ...YAYYY! One more reason we love Mrs. M!! The kids didn't know that she'd stressed over what to get them because she didn't want Kacey feeling left out and Kacey was thrilled to have another pass to use on "high blood sugar" days!

Friday the 13th

Have a GREAT weekend!

Thursday, February 12, 2009

A New Symptom

I got to work another day this month :) This time with 5th graders! It was a great group and overall no major meltdowns. Only one that decided to put a "Kick Me Hard" sign on his friend...haha! Oh yeah, and my first fire drill as a Sub...those are always fun! The end of the day is when the day fell apart. It was 3:30pm and I was bring the class in from outside and one of my friends met me coming down the hall and said "Kacey's low!" I responded with "How low?" (keep in mind the kids were getting their backpacks to go home at 3:40pm) She said "54!" My mind swirled for a moment and I said "Tell them to give her a juice box. NO! Give her 3 glucose tabs!" About that time, Kacey's teacher comes around the corner and says "She's taken care of! I've already treated her." I breathed an instant sigh of relief and got the class packed up to leave. I took them to the front door to go to the buses and I saw Kacey sitting there with Mrs. M and she was smiling. So...this is what happened....

Kacey said she was sitting at her desk and started sweating. (Yikes! SWEATING? Thats a new symptom!) She asked one of her friends if he felt hot? Nope! So asked Mrs. M if it would be ok if she tested? Sure! She got her kit and it was a 54! Mrs. M asked her what she needed to do? She knew what to do immediately. She went to her backpack and pulled out her "emergency stash" of glucose tabs and ate 3. Perfect! There was no need to call on the nurse....Mrs. M & Kacey had complete control over the situation. YAYYYY! I was so proud of her (& Mrs. M!) I was a bit scared because I kept thinking about ...What IF Kacey hadn't tested because she was sweating? I would have got in the car with her THAT low and driven home. Scary! I'm just thankful that Mrs. M is on the ball. We got to the car and Kacey had a little bit of a meltdown. We tested and she was up to a 232 but that wasn't why she was crying. I think the thought of having a low like that at school had finally hit her. Then she cried even harder and said "I knew what to do, Mommy!" Thats right...she did....at only 8 years old, she treated her own low blood sugar without the help of an adult. It's amazing at how responsible our kids are when they are dealing with an illness like this. She did say that sweating wasn't her only symptom...she got the shakies while she was trying to open the glucose tabs but she said she thought it was just because she was scared. (Poor thing!)

She's been on the lower end of things for the last few days. I'm not sure if a dose change is needed? I'm really thinking it's because we've had some really nice weather and she's been playing outside. So now I have a question...yesterday she had gym, played outside for recess, came home and played outside all evening. She went to bed with a 115...woke up with a 151 (hmmmm?) and then she was a 155 at snack...so far so good! But then she went to an 81 for lunch and an hour later she was a 156 but said she was feeling low. An hour after that she dropped to the 54...up to 232 after 30min....and then 2hrs later for dinner she was an 85. Can all the activity she had yesterday affect her blood sugars today? I know that sounds crazy but I'm wondering if all the activity is affecting things.