Friday, November 7, 2008

One Helluva Ride!!

I guess I should have known better than to say anything about things being "better" *cry* After I posted the post before this, I got a phone call from the substitute nurse... "Hi Jill! (hearing desperation in her voice) I think you should come and get Kacey right now! She's throwing up and she doesnt feel good." .... I'M ON MY WAY!!!! So I get there and rush into the clinic...just in time to see Kacey with her head hung in the trash can puking and the Principal sitting with her. Imagine the rush that went thru my body when Kacey looked up at me with NO color in her face!! I tried talking to her and she had this "disoriented" state about her. I immediately cradled her in my arms and her Principal said she was worried because she'd went so pale. So I asked Kacey what made her sick? Was it the coughing? Was it the fact that she went from lunch to recess and was running around and got hot and sweaty? Was it the flu? I don't know....I got her to the car with a plastic bag, towels and a wet cloth in tow....and YES she used them on the way home!!! ~sigh~ Once we got home she got right in bed...her blood sugar was a 187....hmmm ok. She ended up going to sleep and I woke her up at 5pm since it was time to eat dinner...she tested.... 60!!!!!!! Holy LOW NUMBERS Batman! OMG! So now its time to eat....but instead she has 4 glucose tabs....wait 15min and test... Ummmm 495!!!!!! YIKES!!!!!!! Now what? Shes hungry and wanting dinner....shes at a 495 and I dont want to overcorrect....what do I do? Think Jill, THINK! OK...let her eat...give her the insulin for the food but only give her 2 units to correct and then retest in an hour and see where her number is. So thats what I do... an hour later... 181!!! Alright...so do I jump for joy since I didnt overcorrect and drop her again and because shes not thrown up since earlier and she feels fine.... or do I collapse from the emotional toll that this took on me? Neither! I take 4 Motrin to kill the migraine I have and smile. Talk about a roller coaster ride...geesh...my stomach is still in knots from dealing with everything!

It's now time to test for bedtime.... 146 :) ~sighs heavy~ I think I need a hot bubble bath...LOL!

~*~JILL~*~

How Low Can You Go?

It seems like everytime I have a rant at Diabetes, he decides to back off because he knows how damn frustrating it is! Last night Kaceys bedtime blood sugar was a 149!!! The lowest shes been in a while! Even though it was a good number, I decided to put on my Secret Spy costume and see if I could catch that criminal named Mr. D.P. (Dawn Phenomenon). After Cara's mention of it, I did some research and it was saying to test at 3am for a few days and see what the numbers are. I think this will also help the Endo make changes to the Lantus as well...geesh...wouldn't it have been just as easy for the CDE to say "Mom, try doing 3am checks for us so we can use those numbers to help us with her dose" ~sigh~ Anyway...her bedtime check was 149 @ 8pm ... I checked again at 11:30pm and she was a 214 .... then at 3am she was a 170 ... and woke up at 7am with a 142! So shes spiking up toward the midnight hour and then coming down? She was a 182 for lunch and still smiling. Im glad to see her feeling better tho! I will continue to do the 3am checks until I fax numbers on Monday and then see what the doc says then. Hopefully that will give them a better idea of how to change things. Wooohooooo!

As for me... with the school nurse being out, I've been up at the school volunteering because its easier than running back and forth. That "teacher" part of me is starting to come alive again! I taught preschool for 8 years and then when I had Kacey I quit to be home with her. A part of me always wanted to be back in the classroom but then I liked having the freedom of being at home. I've been in the classroom with 1st graders and after a few days they're hugging me and waving to me in the hall...I'm not just "Kacey's Mom" anymore... I'm "Mrs. West" :) So...I've made the decision to go back to work. Yeah I know... it was a long and hard decision...but I'm going to put in to substitute for now. That way I still have the flexability...but I will also be at the school with Kacey if she needs me. I figure if I'm going to be in the class I might as well get paid for being there! I'm really excited about going back. I redid my resume...in the process of getting my 3 letters of recommendation and a copy of my transcripts...and I'll drop by on Monday for the application. For now, I'll continue to volunteer :) I'm working in the office on Monday and helping the principal with some preparations for the Fall Festival. So lots of excitement here and I've really been happy the last few days... its been a long time since I've felt like this!

~*~JILL~*~

Thursday, November 6, 2008

Dose Change...again!

I got a call back (finally) from Kacey's Endo...or should I say CDE. I hate when I can't talk to the doc or CNP. Anyway, they reviewed the faxed numbers I sent and they are going to increase her Lantus from 10 to 11 and then change the dinner carbs 1:18 and leave breakfast and lunch carbs 1:20. Why dont they just change all the meals. OK... Im really frustrated because yesterday school called me at 3:15pm and said Kacey was a 360 and feeling bad and wanted to go home. I got there and Kacey had the "I feel miserable" look on her face and so when we got home she went right to her bed and ended up sleeping for nearly 2 hours. When she woke up it was dinner time and she tested... 153!!

Numbers yesterday were...


262 @ 7am

271 @ 8am

283@ 1pm

360 @ 3pm

153 @ 5pm

237@ 6pm

145 @ 8pm

then 210@ 7am this morning


Now...why am I frustrated? Cuz the dinner dose isnt the only one that needs to be changed! Shes high in the morning when she wakes up...for the last week she wakes up over 200 every morning and then shes high at all 3 meals! I keep screaming at myself because I want to change the dose myself but I know the doc has his reasons for doing what he's doing. I just hate her staying high all the time because it makes her feel so damn bad! She missed 2 days of school last week because she was in the high 300's and just wanted to stay in bed with a case of the "grumpies". So do I change the other meals 1:18 and see what happens and then tell the doc what I did.... or do I leave her like this and wait for the doc to do it? GRRRRRRR!


Oh yeah...and did I mention I always hated Math and now I see numbers in my freakin dreams!!


~*~Frustrated Mommy~*~

Wednesday, November 5, 2008

Mrs. H .... and some prayers needed!

Kacey & Mrs.H at the JDRF Walk to a Cure
She came out to support Kacey and walk with her!

Today got me thinking about how we take some things for granted.

When Kacey first went back to school in September, I was an overprotective mother that felt like she was leaving her newborn with a stranger. The first few weeks were rough...ok they were more than just rough! I nearly worried myself sick. I had the "No one can care for my child better than I can" attitude and I wasn't ready to let someone else take care of Kacey just 6 weeks after being diagnosed. So yes...I was picky...I was harsh....and over the last 2 months so many things have changed. After settling into a school routine, all of us were comfortable with the way things were going. I'd drive Kacey to school...she'd go test before lunch...go back for her shot but she'd call me to make sure her dose was right....and then she'd get her shot and go to class. It's been this routine for the last month now and things have been so smooth. I'm thankful that Mrs. H finally got the hang of figuring up Kaceys dose and shes now able to care for her the way I would....yep I said it... I know she loves Kacey dearly and she tells her all the time "I wish I had a granddaughter....can you be my adopted granddaughter?" and that makes me feel so good! I know shes cared for to the best of her ability and she'd never let anything intentionally happen to Kacey. So...all that being said...over the last 4 weeks Ive gotten very comfortable in that routine and I got a call from Mrs. H while we were home on our 5 day break. Her mother has taken a turn for the worse and she was going out of town. She called to let me know she was trying to get a sub nurse but no one was calling back and she didnt want me to walk into school and be hit with this. We get into school this morning...no RN at school. They couldnt get a sub nurse so one of the teachers is filling in for her. I've known the teacher since I was in high school so I quickly gave her a run-down of Kaceys level of care and since Kacey was running high (yep, shes still in the 200's!) I wasnt feeling upset at all. I told her I would be back up there at lunch so she didnt have to figure out Kaceys dose and Id make sure she got her shot. She was relieved!! So I went back up there for lunch....Kacey was at a 283...yep still high...and so I had lunch with her and came back home. While I was driving home, I realized how greatful I am to have Mrs. H. Yeah, it may have taken her a little longer to learn Kaceys care...but I miss her being there to take care of Kacey.

So Im asking everyone to please send up some prayers for her. She had to hop a plane yesterday and she will be gone the rest of the week. I know she is going to worry about things back here and I pray she doesnt. I want her to focus on the time she has left with her Mom and not worry about anything back here. I pray for her safe return and I pray that she's given the strength to deal with whatever comes.

Thanks!

~*~JILL~*~

Welcome our New President



CHANGE? Yes. Change for this country :) It was time for a change!

Tuesday, November 4, 2008

I Voted!


DID YOU VOTE?
It's your right....DO IT!

Sunday, November 2, 2008

Trick or Treat!


Kacey (Tigger) & Kayleigh (Dorothy)

Stephen (Scarecrow), Kayleigh (Dorothy),
Me (Wicked Witch) & Frankie (Evil Hunter)

We managed to survive Halloween...with a starting blood sugar of 372 @ 5:30pm(can you say EXCITED?) and it dropping to a 97 @ 8pm!! Kacey did really good at the party...until we got back from trick or treating. She started feeling the drop and started feeling bad *sad* so we ended up leaving so she could get her Lantus and something to eat. We got in the car and we didnt even get 5 miles up the road before she fell asleep...poor thing!

So last night she actually had a Reeses cup with her dinner. You'd of thought I gave her a million dollars! She was so happy :) We made sure we added in the 12 carbs with her meal dose and she was happy as a clam! Her numbers are closer to range today so maybe the highs were just the excitement of Halloween coming...who knows?

~*~JILL~*~




Saturday, November 1, 2008

First MeMe

This is my first Meme :) (stolen from Cara...lol)


1. Where is your cell phone? In my hoodie front pocket
2. Your significant other? Asleep In bed
3. Your Hair? Dark Brown
4. Your Skin? Tan
5. Your mother? Caring
6. Your favorite thing? My kids
7. Your dream last night? Didnt dream
8. Your favorite drink? Sweet tea
9. Your dream/goal? To live a long and happy life
10. The room you’re in? Living room
11. Your ex? 13 years ago
12. Your fear? Sound of a chainsaw and crickets
13.Where do you want to be in 6 years? Happy
14.Where were you last night? Celebrating Halloween at a party
15.What you’re not? Ungrateful!
16.Muffins? Mmmmm...banana but!
17.One of your wish list items? Trip to Hawaii
18.Where you grew up? Virginia
19.The last thing you did? Watched movies with the kids
20.What are you wearing? Jeans and a hoodie...its coldddddddd!
21.Your TV? Off
22.Your pets? Cat & Dog
23. Your computer? Damn dialup!
24. Your life? BUSY!
25. Your mood? Tired
26. Missing someone? Sure
27. Your car? White
28. Something you’re not wearing? Watch
29. Favorite Store? Walmart
30. Your summer? Scary...Busy...Kaceys diagnosis....Kayleighs hockey
31. Like someone? Sure
32. Your favorite color? Purple
33. When is the last time you laughed? Dinner
34. Last time you cried? today when watching P.S. I Love You
35. Who will respond to this? Anyone
36. Who’s answers are you anxious to see? Everyone's