Wednesday, March 31, 2010
(I promise I will get to my point soon.....)
We finally found a drink that Kacey will drink for lows....GATORADE! She wouldn't drink it before because Gatorade brought back such bad memories of how sick she was before diagnosis. She was playing softball and she was downing the BIG bottles of Gatorade before a game and then not being able to make it through the game before she had to pee 3-4 times and then feeling sick at her stomach. This went on for a few weeks before diagnosis and then once she threw it up then she didn't want anything else to do with it. When she was diagnosed, she had these horrible thoughts about how Gatorade made her feel. She was sick....VERY sick. So when we were shopping the other day, we strolled the juice aisle, hoping to find something that sparked her interest and she she made the comment about Gatorade and asking to try it again. They now have the G2 which is low sugar (7 carbs per little bottle) so she chose that AND the high sugar one for lows. She ended up having her first low that same day and needed it....and.....IT WORKED! She drank it without being sugar sick and her low came right up!
Now to my point...
Last night, she went low during her sleep. She was only a 71 but she still had 1 unit of IOB and I knew she needed something but not much to bring her up. I opened a Gatorade and thought if I could get her to drink half of it then she'd be fine. I tried to wake her and she was really out of it. I put a straw in the bottle and tried to get her to drink. She was so dazed that she wouldn't drink. How do you all get your kids to drink during lows? I knew she was trying but it wasn't working. So I woke her up all the way for her to drink but she doesn't remember drinking.
Now I'm wondering if I need to go back to using a sippy cup? LOL! I worked so hard to finally take that stupid cup away from her and now I'm having thoughts of buying another one just to get her to drink.
Tuesday, March 30, 2010
Monday, March 29, 2010
The last week has been insane for me and I'm so ready to give in. It all started after dinner last Sunday evening. Kacey was a 116 for dinner...perfect! We'd had a fun filled day outside with my friend Jill and her kids and then we took Chloe for a walk so I was pleased with a 116. Just 42 minutes later....
A 40?!?! Where the hell did that come from?!?! She didn't catch this one....I DID! She ate her dinner and then layed down on the couch. I was getting the house cleaned up and I walked past her and asked her if she was ok? With slurred words she said, "I'm so tired". Sit up and test now! So she sat up and she immediately put her hands on her head and said she felt like she had bricks sitting on top her head and then she burst into tears. I grabbed her test kit and was shocked to see that 40 on the screen. I immediately recalculated her carbs. Yep, we dosed right! So THIS is what we get for an afternoon of playtime? DAMN DIABETES!
Cake icing! She was too tired to chew and so I used the icing to bring her up to a 149.
Ewwwwwwww! I HATE lows like these! Just 30 minutes later, she dropped to a 109. I had her test again before bed and she was a 112. OK, holding steady? Nope! Just 15 minutes later, she was a 64...15 more minutes....79. UGH! So we treated with Barbie gummies and some milk. By 9pm, she was up to a 177. Whew! I was still worried about her falling so an hour later I tested her again...390....WTF?!? So now we've overcorrected? This SUCKS! I spent the rest of the night trying to get her down.
The next day at school, she had lunch and she was an 89 before lunch. Sounds perfect, right? Nope! Just 45 minutes after lunch, she felt like she was going low again. She tested and she was a 116 with 6.5 units of IOB. SCARY! The nurse called me (thankfully I'm doing my long term sub job so I'm right down the hall) and I treated her with a pack of Goldfish crackers. She was already full from lunch so she didn't want to eat those. So 30 minutes later, she tested and she was a 86. Yikes! Still falling! So I had her eat 4 glucose tabs, in hopes that some of that would balance the IOB she had. Ummm...as soon as she ate them....she puked! Grrrrr! So now we didn't have any food in her tummy and still over 5 units of IOB. Blech! She threw up because she was so full and the sugar made her "sugar sick". Now what? She wouldn't drink soda or juice...she wasn't hungry...hmmmm? I finally convinced her to eat a fruit roll up. She ended up coming to sit in the classroom with me because there were kids in the nurse that were sick and I didn't want her around that illness if I could help it. She ended up eating about 30 pretzel sticks and another fruit roll up and came up to a 111 and then 15 minutes later she dropped to a 95 and in another 15 minutes she was a 71. BLECH!! I couldn't keep her blood sugar up to save my life. She finally had NO IOB and she was VERY tired. She came up to an 85 and then to a 137. At dinner....360! I guess all the sugar finally caught up with her :(
She ran high all night and at 2am Herbie said "BG over 500". I knew I was in for a long night and I was struggling because I was still battling a really bad cold that kicked my asthma into full gear. I was taking Nyquil so I could sleep and Frankie took the night shift. I had a fieldtrip with my class on Wednesday and I knew if I sent Kacey to school and she had the day she had the other day then we'd struggle. Sooooo...since Wednesday was Frankie's day off....and she woke up with a 373 (yuk!) ...she stayed home all day :) She ended up running low all day and dropping around 2pm to a 64. Frankie didn't call me and tell me because he didn't want me to worry while I was at work.
On Thursday, she was back to school but she ran high all night and dropped low all day. She doesn't understand why she feels so crappy and we're not sure why she keeps dropping like this. She's not feeling the lows til she's well into the 40's now.
On Friday, she had a fieldtrip and I had already arranged to go on the trip with her. She did fine and we made sure she was in range before we got off the bus to take the tour. She was a 258. Yep, high with excitement. I figured she'd be fine since it was 9am and we'd be eating at 12pm. At 11am, she was a 168. We were over halfway through the tour and she was feeling fine. At 12:30pm, we got on the bus for lunch since it was pouring rain. Kacey sat down and tested....52!! CRAP!!! It's a REALLY good thing that I was on the trip and her teacher was relieved that I was there. Just one more reason why I go on EVERY trip with her. So we treated and thankfully I had some extra snacks with us. When we got back to school at 1pm, she was a 109. She still had IOB and I wasn't sure which direction her sugar was going? I gave her all the extra snacks that I took with us and it's a good thing that I did! Just 30 minutes later, she was a 62!!! Then she ran high all night again.
By Saturday, I was ready for a MUCH needed break! I was STILL struggling with a lingering cold that had lasted 2 weeks already. I spent the morning doing some digital scrapbooking with a friend and then spent the evening with friends for dinner. We had more lows that afternoon but only in the 70's.
Yesterday, we took the girls to Busch Gardens for the first time this year. We've had seasons passes since they were little. My Mom gives us the passes for Christmas every year and we definately put them to use since it's only 30 minutes from us. We had a gorgeous day to go but diabetes decided to rear it's ugly head only an hour after we got there. She dropped to a 49 with NO warning! She wasn't even feeling the low :(
Today she did the same thing! Just an hour after arriving at school today, she dropped to ANOTHER 49! We treated and she came up to a 149 and then she stayed up the rest of the day.
The most frustrating things about all of this???? She's not showing any pattern except being high at night. We made some night time basal changes but we can't make any during the day because the lows are all over the place. I know they are not lows from miscalculations because I've been checking after her to make sure she's adding correctly. Her body is just doing some crazy stuff. We thought at first that it was because she was ovulating and we thought maybe that was causing her sick stomach but I'm not so sure that is what it is? Whatever it is....it's got me FRUSTRATED!!
So sorry I've been MIA around here and in chat. I'm STILL...yes STILL...battling this cold. I've got a terrible cough that wears me out and then after being with a classroom of 17 Kindergarteners...I'm just exhausted by the end of the day. I've taken an antibiotic....been on Nyquil/Dayquil for the last week...and I just got some Tylenol Cold & Cough so I hope that helps kick this crap! I've got loads of pics to share but I'll find time to load those soon. For now, I'll try and check in when I can. Frankie and I have both come to the conclusion....I'm DEFINATELY NOT ready to go back to work full time! My girls need me and this full time job is wearing on me....although that paycheck is gonna be nice :) I'm hoping to get a new camera since mine is really wearing out. It's hard for me to get everything done that I need to get done at home. Next week is Spring Break so I should have a little more time for updating.
Thanks to those of you that checked up on me!
Wednesday, March 17, 2010
No chance in Kacey being pinched today! She went to school dressed in green...complete with a shamrock pump pack that my Mom made her. Cara~ we could never thank you enough for getting her those first 2 packs. My mom has been able to make her over 50 different pump packs, including ones for holidays, and Kacey has set quite a "trend" at school. Those girls look for "new" packs when they see Kacey and they think it's "cool"! Yeah...so having diabetes isn't cool but you can still make a fashion statement! She just got 3 new packs....shamrocks, Easter eggs and spring flowers. She's worn the Easter one and it's not even Easter yet! :)
Friday, March 12, 2010
I'm excited to do an update on Kayleigh's schedule and reveal some great news! Yep, probably 3 posts in one day...record for me! For those of you on my Facebook....Hurricane Jill did hit the high school and did some "minor" damage before being downgraded to a Tropical Storm ;) I'll explain more about what happened and the emails soon!
For now.... here are the pics :)
Kacey looking into the birdbath (2002)
LOL....this is a REAL fav of mine! She used to always put her hands up to her mouth whenever someone said "Uh-oh!" and she happened to fall and she put her hands up to say "Uh-oh!" and I snapped the pic. She's got that lil devil look ;) Hahaha....showing her true side!
Thursday, March 11, 2010
Wednesday, March 10, 2010
Sunday, March 7, 2010
Ten years ago today, was a very scary and very happy moment in my life! I planned you, I wanted you and I couldn't wait to finally meet you! I'd been through a very rough pregnancy, complete with going into early labor at just 6 months pregnant. Dr. S was able to keep you inside and on March 8, 2000 at 10:59pm, you were born! You came into this world with a struggle. I patiently awaited your cry after you came out and I heard nothing. It was silent. I kept turning to Daddy and asking if you were ok and no one would answer me. Then...I heard it...a faint squeak. It wasn't a cry but I knew you were alive! I cried tears of joy as I heard another squeak. You were placed into your Daddy's arms first and then he handed you over to me. We only got to hold you for about 5-10min before you were rushed off to the nursery for observation. I couldn't understand what was going on because when Kayleigh was born they didn't do that. It wasn't until the nurse came back in with poloroid pictures of you that I understood. The nurse spoke softly and calmly to me and explained that they took those pictures of you because they were not sure if you'd make it through the night. I cried for hours and begged to go to the nursery to see you but they wouldn't let me get up. You see, I'd fought for my own life that night as well. So I was being watched closely too. Dr. S came back in to see me and he held a prayer circle before he left that night. He said a Higher Power was guiding his hand and he had to save me before he could save you and you were VERY lucky to be alive! The next morning, they brought you to me and you opened your eyes and looked at me like you'd known me forever. You weighed 7lbs. 13oz, 20.5in long and you had 10 fingers and 10 toes! You had the prettiest color :) Dr. O, your pediatrician, came in to talk to us and she explained that you were without oxygen for so long that they were not sure how much brain damage was done and they wouldn't know until you were 2. I knew in my heart you'd be perfect! By the time you were two, you were above level on developmental milestones, but you developed febrile seizures. It was another very scary time for us. They assured us it wasn't from your birth and they were fluke happenings. You only had 2 of them and by the time you were 4, you were so above level and already reading some words. By the time you got to 1st grade, you were reading on a 3rd-4th grade level and you continued to thrive and be a bright spot in my day. You have a silly sense of humor and you always turn a negative into a positive. That dreaded day came in 2nd grade, your diabetes diagnosis. I was thrown back 8 years to your birth. You fought so hard to live and you were fighting all over again! You took your diagnosis with such ease. I could not imagine being 8 years old and giving myself shots and pricking my finger. And now, here were are, 2 years later and you're finally in those double digits...10 years old! You've come a long way in 2 years! You continue to amaze me at how brave and at ease you are. You continue to educate those around you on a daily basis and I know you're going to do great things when you grow up. You're a fighter and you're my hero! You show those around you how to LIVE with diabetes and I know you have rough days, you're allowed to! God gave you to us for a reason and He has purpose for you. He had a chance to take you 3 times and He wasn't ready for you. You have not fulfilled the purpose He has for you yet. What that purpose is yet, we don't know...but we're very excited to watch you fulfill it! You've said you want to be a "Diabetes Nurse" (CDE) when you grow up and I know you have the heart and compassion to be a wonderful nurse.
Thursday, March 4, 2010
Wednesday, March 3, 2010
It was 15 min til time for school to end. Kacey went to the bathroom and when she was about to walk out, she was hit the the double vision again. One of her friends had come into the bathroom and Kacey was sitting on the floor in the bathroom testing her blood sugar. She was a 46...dizzy....sweating....had the headache....and knew she needed help! She wasn't with it enough to reach for her glucose tabs but her friend K knew she needed help fast. She helped Kacey get up and got her out in the hall. Kacey's other friend, C, was in the hall too and went running to Kacey's class to let Mrs. L know that Kacey was low again. Thankfully the nurse is only 4 doors down from Kacey's classroom and the bathroom is right across the hall from her class so she didn't have to go very far.
She got in the nurse, and was able to get help to treat herself. She came up to a 157 in 15min and she felt better but she was extremely exhausted. I clocked out and brought her home. When she got home, all she wanted to do was lay down. I was so scared she'd drop again so I had her eat dinner. I didn't think she'd drop again after eating....but she did! She came down to a 73 so I had her treat with more glucose tabs instead of eating more food. I was hoping that we'd be able to have that ice cream. By bedtime, she'd started to come around and was actually smiling. Bedtime blood sugar....105! YES!!! TAKE THAT DIABETES! She was able to have that ice cream :) and we even put some whipped cream, nuts and a few sprinkles on top ;)
Monday, March 1, 2010
I decided to get my bath at dinner time (yeah wrong move but I was REALLY needing a bubble bath ALONE! I'll explain more about the stress once I am able to blog about it.) and Kacey figured up her carbs on her own. This is something she does and has done since she was diagnosed. Usually she has me going behind her and totalling to make sure she's right. She's ALWAYS right. So what made me think last night would be any different? She can total carbs....she's fine! I'd done her site change before dinner. She was in million dollar real estate so I knew she'd have some good numbers showing up....especially since I'd popped the top on a new bottle of insulin. When it was time for bedtime snack, she tested and was mad to find a 379 looking back at her. WTF?!?! Where did that come from? She didn't have a high carb meal that would spike her like that. I scrolled back through her pump....Ummm.....31 dinner carbs? She had a MSF Chik patty on a bun with mayo and a snack bag of chips.... 20 + 16 + 15 = 51 .... what happened??? SHE FORGOT THE BUN!!!! She had an instant meltdown. I mean....BIG tears and crying hysterically! This one was one of the worst yet.
WHY? Why was she so upset?
Diabetes had won :( For once she made a mistake....her body paid the price...and now she wasn't going to be able to eat the new ice cream she had picked out. Why did I feel so guilty? I should have counted behind her. I shouldn't have made her do it herself and then she wouldn't of made the mistake. I tossed around the idea of saying "F*#% YOU Diabetes!" and doing a heavy correction and letting her have the ice cream but then I'd feel worse if she went really high then. So we all made her a deal....NONE of us would have the new ice cream until she was able to have some too. Kayleigh felt really bad for her and she kept telling her that she would have the same low carb snack because she wouldn't eat something in front of her. After lots of talking and even more tears, we got her settled down and we all ate cheese sticks and peanuts for snack.
After she'd settled herself, I sat back down with her and asked her WHY she was so upset? Her response....Because I made a mistake and made my blood sugar go high. UGH! She was blaming herself for the high and it was NOT because I'd told her she couldn't have the ice cream. She's too freaking young to have to deal with this and I was having a "FU D" moment. I explained that it was ok to have mistakes but from now on we just need to make sure we count everything on her plate and I told her I'd help her total so she didn't have to do it. She looked at me and replied, "It's ok Mom, I really can do it." Ahhhhhhh! Give her responsibility and then try and take it back and she gets offended. So I told her I'd just do it secretly to make sure she was right like I've been doing and we could do a High-5 if she got it right. Whew!
Sorry for missing most of chat again :(