Yesterday we decided to end the week with a trip to Christmas Town. It's something new that Busch Gardens was doing this year. My Mom surprised us with tickets and we surprised the girls by taking them. They were SHOCKED! Christmas lights really excite my girls and this just magical! They had lights galore over the park....real live penguins....emotional shows with traditional Christmas carols...and top it off with a Christmas show featuring characters of Sesame Street. Both of my girls were Sesame Street fans when they were little and even though they might not admit it now, they still love it! The smells through the park were amazing! They had fresh baked goods....Starbucks coffee....and apple cinnamon smelly things hidden. It looked and smelled like Christmas. We paused for a moment to look through the window at the very "real" looking Santa. His suit was gorgeous! As Kacey peered through the window, she whispered, "Mom, thats not the real Santa" and she smiled at me. I winked and whispered back, "You never know!" She smiled back at me and my heart melted. We ended the night with a final trip by the ice cream shop. I could hardly resist the peppermint flavored ice cream! Kacey chose the rainbow sherbert and Kayleigh chose the cookie dough. Diabetes wasn't rearing it's ugly face and the Herbie revealed a beautiful 94 on his screen. Thank you diabetes for not stealing our joy!
Monday, November 30, 2009
It's Beginning To Look A lot Like Christmas!
Yesterday we decided to end the week with a trip to Christmas Town. It's something new that Busch Gardens was doing this year. My Mom surprised us with tickets and we surprised the girls by taking them. They were SHOCKED! Christmas lights really excite my girls and this just magical! They had lights galore over the park....real live penguins....emotional shows with traditional Christmas carols...and top it off with a Christmas show featuring characters of Sesame Street. Both of my girls were Sesame Street fans when they were little and even though they might not admit it now, they still love it! The smells through the park were amazing! They had fresh baked goods....Starbucks coffee....and apple cinnamon smelly things hidden. It looked and smelled like Christmas. We paused for a moment to look through the window at the very "real" looking Santa. His suit was gorgeous! As Kacey peered through the window, she whispered, "Mom, thats not the real Santa" and she smiled at me. I winked and whispered back, "You never know!" She smiled back at me and my heart melted. We ended the night with a final trip by the ice cream shop. I could hardly resist the peppermint flavored ice cream! Kacey chose the rainbow sherbert and Kayleigh chose the cookie dough. Diabetes wasn't rearing it's ugly face and the Herbie revealed a beautiful 94 on his screen. Thank you diabetes for not stealing our joy!
Saturday, November 28, 2009
Giving Thanks
For our family, it was long and emotional, yet it turned out to be a start of a tradition. Over the last few weeks, I've been tossing around the idea of staying at home for Thanksgiving. For the last 11 years, we would pack up and go to Granny's house for lunch and then go to my Mom's for dinner. When I started to think about our yearly "routine", there was a BIG missing link.....no Granny. Our entire family was taking that really hard, especially Frankie. Granny played such an important part in our holidays and our traditions and this year is going to be tough. We're at the 6 month mark of her death and it's still just as hard for everyone as it was six months ago.
Granny's biggest joy was getting everyone in the family together to eat. She loved to cook and no matter what time of day it was, if you stopped by her house, you'd better have room for something to eat because she was going to cook for you. This year, the family was divided. There was no gathering at Granny's house, no cramming 25 people into an apartment and there was no Granny.
I decided that I'd take on the task of cooking this year. I spoke to my Mom about it and told her that I wanted Thanksgiving at my house this year and she could come here to visit. I then broke the news to Frankie's Aunt, who thought she was going to be alone that day. I saw a spark come back into her. She began talking about what she could make and bring. We told her we would drive down to get her in the morning and she could help me cook and then we'd take her home later after dinner. We only live about 20 minutes from her but our road is long and winding and she's scared to drive down here so once she found out we'd come and get her then she got even more excited!
I woke up around 7:30am and got the girls up around 8am. We did some last minute cleaning before the cooking started. Kayleigh was in charge of desserts this year and she'd already made 2 pumpkin cheesecakes. She was ready to make her cheesecake brownies. Once those were done, it was my turn to get in the kitchen! This was not only my first year cooking Thanksgiving, it was my first time ever preparing a turkey. Many of you may not know this....me, Kayleigh & Kacey are vegetarians. So cooking a turkey was a BIG deal for me! I started the turkey around 10am. Frankie left to go pick up his aunt shortly after I started cooking. I sat down and enjoyed the rest of the Macy's parade with Kayleigh since there was really nothing else I could do. Frankie arrived back home with his aunt and she walked in with a smile. This is the first time I've seen her really smile in the last 6 months. She came in with a tray of prepared yams...just like Granny used to make them for me. She said, "I made your yams the way Mama did." I smiled and when I got to the kitchen alone, I broke into tears. Granny knew I couldn't make those yams the way she did and now they're made! Kacey managed to convince Frankie and his Aunt to play the Wii with her. His Aunt had never even held a Wii remote so it was all new to her! She caught on fast and before long I could hear giggles coming from my living room. I peeked around the corner to see them all laughing hysterically and bowling on the Wii. Laughter...something that Granny loved and there hadn't been much of. She'd of been so happy :)
By 5pm, we were ready to eat! My Mom and Brian came over and my best friend Lori and her boys came over. Lori's husband is deployed right now (and has been for 23 months). He's due to come home next week so instead of spend Thanksgiving alone, we invited them over too! Ten people, lots of laughter, a football game between my team and my brothers team, more food than we could ever eat.....yep, it was perfect and a great start to a new tradition!
So as difficult as the day was, it turned out to be wonderful!
Tuesday, November 24, 2009
Mist vs. Shot?
So I talked to the school nurse and I checked the box for "mist" but now I'm still worried. According to the research I've done....this is what I found....
"However, information released by MedImmune, the makers of FluMist, earlier this year, claim that the FluMist is safe for children with compromised immune systems. I quote from their website, "In our pilot study, immunocompromised children with cancer who received FluMist had no related serious adverse events, explained Pat Flynn M.D., director, clinical research, infectious diseases, St. Jude Children’s Research Hospital. We believe these data are promising and add to the extensive body of evidence supporting the overall safety of FluMist in the population for whom it is approved. A larger study will help us confirm the safe use of FluMist in immunocomprised patients.""
I also found out that people that get the mist carry and shed the live virus for 21 days. OK....so if we don't get the mist then Kacey has the chance to be exposed to the live virus from every other student in her class. This sounds pretty damn scary if you ask me!!! What about us? Since she gets the mist, then aren't we at risk at home of being exposed to it? Kayleigh's school isn't offering it yet and I'm not sure when they are due to get them. Since I work for the school, I have the opportunity to get it. I'm just scared!
I need some help with this one! Anyone had the mist? Any D-Moms take their children with diabetes to get it yet? Any symptoms afterward?
Friday, November 20, 2009
Spirit Assembly & Cake Business
OK....now that I'm done sharing accomplishments....
Just a reminder, there is only a few more days to sign up for the Secret Santa Family Exchange. If you haven't signed up and want to play, NOW is the time to do it! So far we've got 15 signed up. If your name is NOT on the list below then that means you haven't registered with Elfster and you need to go to the link in the previous post to get on the list.
Names for the Exchange:
Jill (Organizer)
Amy L.
Amy S.
Chasiti
Hallie
Jennifer
Joanne
Kathy
Laura
Meri
Nicole
Ronda
Shannon
Tracie
Wendy
(All in ABC order, just like Elfster lists them...haha!)
Now, to answer Shannons question...We will find out on Monday who the family is that we're buying for. I click the DRAW tab on Elfster and it shuffles us all and sends us our family. I won't know who got who so it's up to you to remember who you have to buy for ....LOL! You will find out who bought for you when you open the package and they reveal themselves. I thought it would be more fun to keep it a secret than to know who was buying for who. Hope that helps :) Any other questions....just ask! :)
Monday, November 16, 2009
Exchange
If you are interested in participating in the Secret Santa Family Gift Exchange then click on the following link and register yourself.
GIFT EXCHANGE
The DEADLINE for registration will be Nov. 23rd. The reason for this is so that we can hit those after Thanksgiving sales :) It also gives us a month to shop, wrap and send. Some of the Moms live further away than others. We need to take this into consideration as well. We wouldn't want a family left without a present on Christmas. So be sure to look and see where your package is going and allow mailing time.
I'm SOOOOO excited about this!!
So, on Nov 23rd, Elfster will magically draw names and the secret game begins! Have fun!!!
***Edit***
This exchange is open to ALL D-Moms and their families :)
Secret Santa
So....how many of you out there are interested?
Do you want to shop for the D-Mom & Child? Or just the Child? What price limit? Deadline for it to be in the mail?
~~~~~~
My vote is: YES!
Shop for both Mom and Child
$10 for each one
Mailed by Dec 15th to ensure it arrives by the 25th
Saturday, November 14, 2009
WDD Treats
Why Blue?
The purpose of the diabetes symbol is to give diabetes a common identity.
Until 2006, there was no global symbol for diabetes. It aims to:
support all existing efforts to raise awareness about diabetes
inspire new activities, bring diabetes to the attention of the general public
brand diabetes
provide a means to show support for the fight against diabetes
The campaign for a United Nations Resolution on diabetes was a response to the diabetes pandemic that is set to overwhelm healthcare resources everywhere. The campaign mobilised diabetes stakeholders behind the common cause of securing a United Nations Resolution on diabetes. The United Nations passed Resolution 61/255 ‘World Diabetes Day’ on December 20th 2006.
The blue border of the circle reflects the colour of the sky and the flag of the United Nations. The United Nations is in itself a symbol of unity amongst nations and is the only organization that can signal to governments everywhere that it is time to fight diabetes and reverse the global trends that will impede economic development and cause so much suffering and premature death.
Friday, November 13, 2009
History Making Nor'easter
Wednesday, November 11, 2009
Herbie Fell Off!!!
I got a call around 1:30pm from the school nurse. My heart always skips a few beats when I hear that ring tone that sounds like a siren when my cell rings the school nurse number. I answered it and her nurse said, "Hi Jill, I don't want to scare you...but....." BUT? BUT WHAT? "Kacey lost her pump...." WHATTTTTTT? OK....before I could let her finish I was already spouting. Where was she last? How did it fall off? Did she find it? UGHHHH! I was freaking! Her nurse went on to explain... "Apparently she was in music and it fell off and another child found it and thought it was a cell phone and Kacey came rushing down to me with it. She reconnected and she tested. Her blood sugar is fine and she's gone to lunch and bolused." AHHHHHHHHH! That still doesn't explain how it fell off. Where did it disconnect? Is there air in the tube now? Forget it! I'm on my way!
I get to school and rush in carrying a new infusion set, bottle of insulin, a cartridge and a pump pack with her belt. Kacey was sitting in the nurse waiting for me. She began to explain the little vacation that Herbie decided to take. To backtrack just a little....Kacey has always been a "chunky" child and we've never been able to find jeans to fit her. Last weekend while we were shopping, we ran across plus size little girl jeans. Wow! Kacey was so excited because she usually wears stretch pants and she's wanted to wear her pump in her pocket like the teenagers do. I can understand her wanting to try it. When she tried the jeans on they were perfect fits! She was overly thrilled that she'd be able to put Herbie into the little case with the clip and wear it on her pocket. I bought her 3 pairs! Yesterday she decided to wear Herbie in the case with the clip and tuck it on her pocket. She went to music class and apparently Herbie made a break for it and bungee jumped and she never felt it. The diconnect was at the cartridge....not her infusion set! She was walking around with a tube hanging and then a child in her class picked up Herbie and gave him to the teacher, thinking it was a cell phone!!!! Thank goodness he didn't tuck it in his pocket!!! Kacey realized that it was Herbie and ran right to the nurse with him. After careful inspection, we found that the clip was broke and thats what caused Herbie's jump. :( I went ahead and did a complete site change because I wasn't taking chances on getting air bubbles! She strapped her belt back around her waist and tucked Herbie safely into her pack and with a smile she said, "I think I'll just wear my pack from now on!" Whew!! I had the sickest feeling in my stomach thinking about her losing a $6000 piece of equipment that is supposed to be "attached" to her.
For those of you that haven't seen the weather....we're being hit with a November Nor'easter here. The wind is picking up and we're already seeing some tidal flooding. The wind gusts are up to 45mph and they're expecting them to get stronger. They're expecting 2-7 inches of rain by tomorrow and they're anticipating the flooding to be worse than Hurricane Isabel. During that storm, our house flooded! I'm a little worried and I'm praying that we don't get the water like we did in 2003. They're calling it a history making Nor'easter and we'll be keeping a close eye on the news as this gets worse! Say a little prayer for us!
I'll update as I can!
Tuesday, November 10, 2009
Diabetes Chat
What started as a post on my Facebook, led to a reach out to our network. A small group of D-Moms that chat and share on Facebook, got together and then we started reaching out saying "Oh! We have to invite so and so to come too!", "Does anyone have so and so's address or Facebook?" and we ended up with a group of 10 Moms that all have kids with diabetes. Sure, it didn't end up being a diabetes chat since we were all so excited to just be in the same room with one another online....a first for all of us! I just felt like I should post and invite others to meet with us too.
Just follow these few simple steps....
For those that are interested in getting into our online chat group
1. Download MSN Windows Messenger Live
2. Add me- butterflybrat75@hotmail.com (and let me know who you are...LOL!)
3. Meet us on Sunday at 9pm EST or when I'm lit up green I can chat anytime!
4. And....we're not limiting it to D-Moms ...D-Dads are welcome too :) and D-Grandma's ....and PWD!
Come join us for fun!!!
Monday, November 9, 2009
D-Blog Day
I hate how diabetes takes control over our daily life. No day with diabetes is ever the same. We take each day as it's thrown at us and we deal with it the best way we know how to. I hate how diabetes makes Kacey feel. She can go from having an amazing day out shopping to dropping low in an instant and we have to put diabetes first and stop whatever fun we're having to make sure diabetes doesn't take full control. She can also go to sleep at a nice 150 and wake up with a crappy 400. Why? She didn't eat anything. Thats life with diabetes! So many unexplained things and "never know's". It's that part of diabetes that I hate!
If I could take all that away, I would. But on the flip side, diabetes has made me the Mommy that I am today. It forced me to look at life so much differently. It forced me to put my feelings out there and start this blog. MY Blog. My Thoughts. MY feelings. Right out there for the world to see. And as a result of that, I've made some of the closest friends that I never thought was possible. MY D-Mom friends. MY D-friends. MY friends that blog about daily life with diabetes. Many of us choose to write about things other than diabetes just so it keeps us in check and makes us feel a bit more "normal". We can't let diabetes run our lives! I'm a much better person as a result of diabetes. MY blog has given me more than I could have ever imagined. I love the support that I have here and I know that if I'm having a rough day and need to vent, then I can come here and blog about it and all of you will understand. With the exception of the idiot that posted to the McDonald's post (you know who you are), I've had NOTHING but support on here and I hope to continue blogging til Kacey is grown and beyond. One day she will start her own blog about her journey and her memories about growing up with diabetes and I hope to be right along side her as she does. So many of the diabetes bloggers here have given me hope for her future. Kerri has shown me that with the right care, Kacey CAN have a baby. Scott has shown me that with lots of control, Kacey CAN play a sport and be good at it. Cara has shown me that Kacey CAN live on her own and travel and be ok. Molly has shown me that Kacey CAN have that "companion" with 4 legs if she wants one. (We love you, Dixie!) There are other D-bloggers out there that have helped me in one way or another but I'd be here listing all day! And for all my other D-Mom friends & one D-Gma (you know who you are)....you all have shown me that it's OK to feel sad, angry, happy, miserable and excited all in the same day. It's OK to hate diabetes and feel the feelings I do. Most of all, you've shown me more love and support than one person can ask for.....and for that... I AM BLESSED!
I hope everyone had a wonderful D-Blog Day! <3