In our 504 Plan, it's stated "A parent will attend EVERY fieldtrip with Kacey". At first the school bucked me on this. Why do you have to attend? We can send the nurse with her. She should be okay for the few hours she is away. NOPE! I WILL attend and I WILL care for her while she is on the trip. Sometimes they would tell me that if I was going then I could just be a chaperone or I had to ride the bus. No problem! I will go under those conditions. BUT....one place I will NOT chaperone is an amusement park. I made the mistake of doing that last year and because I was a chaperone I had to ride the bus and because I had to ride the bus then when Kacey's blood sugars went wonky that meant we had to sit somewhere and we couldn't just go home. It made a long day for her. As I thought about the whole "chaperone" thing, it made me think a little more about actually taking on that position. What if something happened to Kacey and I was a chaperone? I am responsible for an entire group of children that I now had to find someone else to care for. Is that safe? Not at a theme park! Our school lets these kids (6th, 7th and 8th grade) go off on their own and reposrt back to a chaperone at a certain time and location. Each "group" has a cell phone and they are to call if they will be late. The "group" then splits and these kids must be in pairs but I'm not crazy about this idea! Anything can happen! So I chose not to chaperone and I explained that Kacey would ride to the theme park with me in my vehicle and we would mingle with her groups of friends and when she was ready to leave then we would leave and that way if something happend to her blood sugars then I was solely responsible for just her and I could tend to her without added worry. Seems perfect, right? And then THIS happened within ONE HOUR of being in the park.....
ARE YOU KIDDING ME?!?! Check with meter revealed....
For those that don't understand WHY I need to go....this should clear it up! Imagine your child being on a theme park ride, getting off and collapsing from a illness. Diabetes doesn't sleep. Diabetes doesn't always play nice. THIS is why we need a cure and THIS is why we advocate. When your healthy child is off having fun and riding those roller coasters, we are sitting on a bench treating a blood sugar and trying to keep Kacey safe enough to even ride those rides.
Yeah.....Diabetes....YOU SUCK!
3 comments:
Sorry... Poor Kacey. I hate when diabetes steals the fun from our kids.
We don't ever have to worry about lows at amusement parks... We usually run a 95% temp basal just to keep in her in the high 100s!
Anyway, I couldn't imagine letting anyone else handle my child's diabetes in a situation like that. Way to stay strong!
Good for you for being so insistant for Kacey. She is lucky to have you. My husband didn't have the most attentive care as a child. I don't know how he did it. Although that was in the 80s and diabetic care wasn't as diligent as it is nowadays so that may have played a role. But good for you.
Diabetes and amusement parks are sooo tough. When we were in Florida last year....we had nothing but swinging from low to high. ugh. You are such an amazing mom! Love you girl!
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