Wednesday, January 12, 2011

Pump, Pump And Awayyyyy!


Well..it's official!

I faxed in Kacey's paperwork for an Animas Ping yesterday. I was emailing with her CDE and the Endo about submitting the paperwork for Animas and Dexcom. Unfortunately we have to wait for Dexcom because they want her to get the hang of the new pump first before overwhelming her with another piece of equipment. Understandable! I explained everything to Kacey and she was fine with it but she told me it wouldn't be long before she understood her pump so they should just on and order Dexcom...LOL! She's a mess!

I'm about to bust because she has already picked out names for everything. Pump. Remote. Dexcom. They all 3 have girl names! I can't tell you all the names yet because she wants me to wait until she gets them so we can post a picture. However....I will tell you...she's calling them "The Power Pump Girls" (remember the Power Puff Girls?) Hahahaha! She loved that show when she was little! Anyway, she's got pumponthebrain syndrome and it's all she's talked about lately. I'm so thankful that the transition is going to be MUCH easier than I thought it would be. I think it would have been much more difficult if it was "Herbie" that she was giving up but since she's already had that experience then I think we're good to go!

Also...MORE basal changes this week! She was only in range 15% of the time last week...YUK! We also changed her I:C ratio from 1:8 to 1:7. I'm hoping that maybe this will help as well!
I had a long conversation with her about infusion sets yesterday. She wants the colored infusion sets now. She's always been so scared of the automatic inserter sets. I explained to her that she couldn't have the cute colored sets without having them in the auto sets. We talked long about her growing up and how she does all of her care except change a set. I know she *wants* to do it on her own but without the automatic one, she just can't right now. I explained that she doesn't *have * to be ready to do a set on her own but eventually she is going to want to do one and if we're already doing them, then she won't be so scared when it comes time to do them. Soooooo....I think when we go for pump training she is going to be ready to try the automatic one. It all goes back to the noise. She relates that click noise to being in the hospital and having her fingers torn to shreds by those HUGE lancets they use. When we came home from the hospital, I was doing her finger sticks and it took a long time to convince her that I was not going to hurt her like those HUGE lancets did. Once she gained some confidence with one certain pricker then that is all she would use. It wasn't long before she was doing them on her own but that is because she knew the sound, she knew the pain level and she was ok with it. That fear of the unknown is a scary thing for anyone so I can only imagine how scary it is for a child. We get into a diabetes comfort zone and we've been in that zone for almost 2 years now. Same pump. Same infusion sets. Same insulin. Same pricker. Same lancets. Same, same, same! Now we're about to step out of that comfort zone but I think I know Kacey well enough to say....as soon as she gets over that fear of the unknown then we will be back into a new comfort zone with some really new and cool technology!
Now...it's the waiting game for insurance approval :)

5 comments:

Lorraine of "This is Caleb..." said...

Sounds exciting! Good luck with it all! I bet she will have things mastered quickly with the pump and be able to start DexCom ASAP! ;)

Deanna said...

Woot Woot! Can't wait to meet The Power Pump Girls!! :)

Reyna said...

Awww...you guys have a lot going on. I love that she felt Endo should have just put in the order for the Dexcom...b/c she'll have her new pump down in no time flat! LOL.

Joe will not change his pump sites yet either. I have tried to talk him into it...but he is not ready. He does do the rest of his care at school OR if I need back up at home.

Good luck and I cannot wait to meet the "POWER PUMP GIRLS" - WOOT!

Laura @ Houston We Have A Problem! said...

Woo-Hoo!
Love that girl --- she so smart!!

Cant' wait to hear the names. :)

Alexis of Justices Misbehaving Pancreas said...

So exciting!! Love the power pump girls idea!