Through the eyes of an 8 year old....
Me: Last Thursday you went to Pump Class at CHKD. What did you learn while you were there?
Kacey: I learned about how to work all the different pumps and how to put a site in and I learned that the first insulin pump was a backpack and the second insulin pump was the size of a notebook. (Wowwww! She payed attention!)
Me: When the CDE told you that you HAD to get a pump site put in, how did you feel?
Kacey: I was a little scared because I never had one done before and I thought the needle would be very big.
Me: When you saw Nurse Kristen and you knew she was going to do your site, did you feel less afraid?
Kacey: Yes because I know shes very gentle and very nice.
Me: When you got the site put in, was it as painful as you thought it was going to be? How did it feel?
Kacey: No, it felt a little tingly but not hurting tingle.
Me: We made a "make believe" pump so you could see how it felt to wear a pump during the time you had your site in. Did it feel weird?
Kacey: Yes because I never had a pump before and it was clipped to my pants.
Me: You had the chance to show off the site and pump to Mrs. M and your friends. How did they react? Did it make you feel uncomfortable?
Kacey: I didn't feel uncomfortable and all my friends asked a bunch of questions and I answered them all.
Me: Did you have a hard time riding your bike or playing outside when you were connected to the pump?
Kacey:I did but I got used to it.
Me: Did you have any problems with snagging your site or forgetting you had the pump on?
Kacey: Yes when I was asleep I tugged on it on accident. Then when I was putting my playstation game away I forgot it was my "pump" in my hand and I sat it down and walked away. It tugged and hurt really bad and I started crying. Then another time my pump fell out of my bed and tugged my site and woke me up in the middle of the night.
Me: How did you sleep with it?
Kacey: I put it on the side of me but it still fell out of my bed.
Me: Were you sad when it was time to take the site out?
Kacey: Yes because I got used to have it in and then I had to take it out and I couldn't put another one in. I want my pump really bad and now I have to wait for it.
Me: Did it hurt when you took it out?
Kacey: Yes because I pulled the cannula out really slow because I was scared.
Sunday morning...sleeping in til 8am. She woke up at 6am when her pump fell out of bed and so I let her come out to the couch and go back to sleep.
This pic made me cry! Taking the pump site out was a very difficult task. It was moreso because of the reality that this was just a "trial" and it there wasn't going to be another site to replace it. She cried so hard for a few minutes and I had to keep reminding her that we had to go through this "waiting period".