Snow in spring? Yep! We got it! Yesterday was a day full of snow flurries and sleet. It was back to being cold and it kept us bundled up in our jammies for the day. The roads were a mess and since we have to cross the bridge for church, we figured God would understand if we couldn't be there because of the nasty weather.
We had another weekend full of busy-ness.
Saturday was filled with some cold fun at the Daffodil Festival. The temps here have dropped back into the 30's and they were calling for rain mixed with sleet and snow. Thankfully the rain moved out for the parade and we were able to enjoy some fun. Every year we go, it's like a reunion of sorts. You see people you haven't seen during the year and it's fun to catch up with everyone.
I seriously had NO clue that the ADA had a local group! I'm gonna have to look them up and see what kind of networking I can do. But I'm sure you can imagine the excitement Kacey had when she saw this! It was almost as if she wanted to scream out to them, "Hey! I'm type 1! Thank you!" but she didn't. It was very cool though!
Sunday brought the snow and sleet and we were stuck inside. We watched movies and caught up on some much needed rest. Kacey's still having some crazy sugars and I'm going to call today and see what the deal is on Dexcom. She ended up having a low of 43 at 11pm and after 4 cups of juice and 2 packs of peanut butter crackers (total of 12 crackers) she finally came up to a 134 at 1am. It was a nasty 2 hour battle. Here lately it seems like she needs more juice to bring her up. Before it was only a cup and now it just seems like she's pushing more to stay above the danger zone. Hopefully we can get these basals figured out soon! UGHHH! I feel almost like I did when we were in the "Honeymoon" phase. She'll run high then we make adjustments and then it's almost like Mr. Pancreas decides to work again (which we know it can't) but it's crazy!
Hope everyone is doing well. I'm going to try and catch up on blogs soon! Love ya's!
Monday, March 28, 2011
Wednesday, March 23, 2011
Crackberry Love
Creature of Habit and Hater of Change. Thats ME!
I'm not afraid to admit that I'm seriously behind the times in technology and when it comes to upgrading anything...I hate it! I like the comfort of my old stuff and if it's not broke then I'm not going to spend the money to upgrade it. My brother, on the other hand, is a lover of new technology and when something new and cool comes out then he's usually one of the first in line to get it. He's harped on me for years about bringing myself into the world of new technology and I've been so hesitant. Mostly because I hate change!
There have been so many times that he's shoved me into the new world. Like back when digital cameras came out. He had this new cool camera and I was still taking pics on film and having them developed. When he got a new camera then he shoved me into the digital world by giving me his old digital camer and I never looked back. When the girls were old enough for video games, I refused to buy them one. He hooked up his Playstation 2 for them and shoved us right into the game world. I'll admit that we jumped on the Wii bandwagon the year after it came out. Not long ago, he gave Kacey his iPod when he got his new touch one. Years ago, he helped upgrade my dinosaur computer to a new running one. He's always tried to help me get up to speed with the updated technology.
So my cell phone isn't any different. I used to have a flip phone that served it's purpose...contact with everyone at anytime. But then when my plan was due for an upgrade 2 years ago, I got the enV3. Thats what I've had and I LOVED it. There was nothing wrong with it. I could operate it with my eyes closed. I knew where every feature was. I've always had unlimited texting, pics, videos...all that jazz. But then....little did I know my world was about to be rocked!
When Verizon got the iPhone, my brother had only had his Blackberry Storm 2 for about 6 months. When he came home to visit back at Kayleigh's sweet 16 party, I checked it out and he tried to convince me to switch over then. I wasn't ready! So.....I got a package in the mail 2 weeks ago. It was from my brother! In the box were TWO Blackberry Storms, cases and chargers. AHHHHHHHHHHHH!!!! I knew what this meant! It was time to come up in the world. Was I ready? Kinda! I played around with the phone and was totally lost. It was totally touch screen...something that I'd never played with. I took a few days and played with it and had a love/hate relationship with it. I was so used to my phone and where the buttons and features were and this was ALL NEW! The more I played with it, the more I thought...WOWWWW this is REALLY cool! So a week after I got it, I switched it over! I set up my email, added my contacts and transferred my pics from one card to the other.
And now....I can't believe I was missing out on all this! I have my email and internet at a touch and it's nice to be in "new" technology....at least its new to me...LOL! You all can giggle all you want cuz I know you think I'm crazy since I sound so old. I'm SOOOOO very thankful for my brother! If it wasn't for him constantly pushing me into new technology then I'd be 20 years behind the times instead of just 10 years...HAHAHA!
Thanks Bro for all you've done for me! With this new technology, I feel like I have better contact with the outside world. Heehee! Now I just have to figure out all the features that I have :) I did figure out how to get some free game apps....HAHAHAHA!
So in the middle of all the emotional mess lately....I've moved up in the world! For now....I'm in Crackberry Love! <3
I'm not afraid to admit that I'm seriously behind the times in technology and when it comes to upgrading anything...I hate it! I like the comfort of my old stuff and if it's not broke then I'm not going to spend the money to upgrade it. My brother, on the other hand, is a lover of new technology and when something new and cool comes out then he's usually one of the first in line to get it. He's harped on me for years about bringing myself into the world of new technology and I've been so hesitant. Mostly because I hate change!
There have been so many times that he's shoved me into the new world. Like back when digital cameras came out. He had this new cool camera and I was still taking pics on film and having them developed. When he got a new camera then he shoved me into the digital world by giving me his old digital camer and I never looked back. When the girls were old enough for video games, I refused to buy them one. He hooked up his Playstation 2 for them and shoved us right into the game world. I'll admit that we jumped on the Wii bandwagon the year after it came out. Not long ago, he gave Kacey his iPod when he got his new touch one. Years ago, he helped upgrade my dinosaur computer to a new running one. He's always tried to help me get up to speed with the updated technology.
So my cell phone isn't any different. I used to have a flip phone that served it's purpose...contact with everyone at anytime. But then when my plan was due for an upgrade 2 years ago, I got the enV3. Thats what I've had and I LOVED it. There was nothing wrong with it. I could operate it with my eyes closed. I knew where every feature was. I've always had unlimited texting, pics, videos...all that jazz. But then....little did I know my world was about to be rocked!
When Verizon got the iPhone, my brother had only had his Blackberry Storm 2 for about 6 months. When he came home to visit back at Kayleigh's sweet 16 party, I checked it out and he tried to convince me to switch over then. I wasn't ready! So.....I got a package in the mail 2 weeks ago. It was from my brother! In the box were TWO Blackberry Storms, cases and chargers. AHHHHHHHHHHHH!!!! I knew what this meant! It was time to come up in the world. Was I ready? Kinda! I played around with the phone and was totally lost. It was totally touch screen...something that I'd never played with. I took a few days and played with it and had a love/hate relationship with it. I was so used to my phone and where the buttons and features were and this was ALL NEW! The more I played with it, the more I thought...WOWWWW this is REALLY cool! So a week after I got it, I switched it over! I set up my email, added my contacts and transferred my pics from one card to the other.
And now....I can't believe I was missing out on all this! I have my email and internet at a touch and it's nice to be in "new" technology....at least its new to me...LOL! You all can giggle all you want cuz I know you think I'm crazy since I sound so old. I'm SOOOOO very thankful for my brother! If it wasn't for him constantly pushing me into new technology then I'd be 20 years behind the times instead of just 10 years...HAHAHA!
Thanks Bro for all you've done for me! With this new technology, I feel like I have better contact with the outside world. Heehee! Now I just have to figure out all the features that I have :) I did figure out how to get some free game apps....HAHAHAHA!
So in the middle of all the emotional mess lately....I've moved up in the world! For now....I'm in Crackberry Love! <3
Tuesday, March 22, 2011
Massive Update
HOLY MOLEY! I've got so much to update! For the last week, I've been on an emotional roller coaster full of cries, laughs, smiles and ultimately ending with turning it all over to God. So without prolonging it anymore....here goes.....
Wednesday 3-16-11
Kacey had her Endo check up. I was praying for good numbers but I knew what we'd been through over the last few months so I wasn't expecting it to be pretty. The visit went great and we weren't yelled at because we've been in contact with her Endo every single week making changes to basals and carb ratios trying to get these growth spurts and hormones under control....which we all know is nearly impossible. So...the bad news was her A1c had gone up to 9.1%. I was sad to hear it but I knew I'd done everything I could to get it lower. Her Endo reassured me that we had to keep plugging along and eventually it would come back down. Those female hormones are wreaking havoc on her system AND...she grew ANOTHER inch! She is now 59.5in tall....1/2 inch from 5 FEET! Her foot has grown 2 sizes since December so there is a reason for all these crazy numbers. Her Endo did make some more changes to basals to see if we can get those afternoon lows to settle down. More good news....we submitted the paperwork for Dexcom! Kacey is VERY excited and her Endo thinks it will be a very useful tool for us.
Once we got home, Kacey was in the kitchen with me and she says "Mom, have you ever felt like you were standing but you couldn't feel your legs?" Ummmm.....NO! I immediately made her check her blood sugar. She was in the 200's so I was assuming it was because she was high. She ate lunch and we went outside to enjoy the beautiful weather. We came back inside around dinner time and she was still in the 200's. Not normal for her...usually all the bike riding and running around would drop her like a hot potato. She ate dinner and then about 2 hours later, I had her get a shower. When she got out of the shower, she called for me and said "I have that weird feeling again. The one that I can't feel like I'm standing and now it's in my arms too." So I had her come out and lay across my bed to settle herself. She started crying because she said it was a "weird feeling and she was scared". She said she felt like she did when her sugar was a 36. So I grabbed her kit to see if she'd dropped....nope she was in 300's now. She started screaming and crying insisting she was low so I grabbed another meter to make sure there wasn't anything funky going on....nope still 300's! I did her site change and I let her get back in bed with me to watch TV. She layed there and continued to cry and then about an hour later she went into something like a panic attack. She could not physically move her arms or her legs! She couldn't wiggle her toes at all. It was like she was temporarily paralyzed and she was hysterical. I couldn't stand it any longer! Frankie and I pulled her to her feet and drug her to the van and rushed her to the ER. They took us right back since her blood sugar had hit the 400's by then. She was still hysterical but she'd gotten some movement back in her arms about an hour after we got there. The ran tons of blood work and about 3 hours later, she was able to start moving her legs. Nothing showed in the labs...no DKA...no crazy numbers in cell counts....nothing! So the only thing they can think was it was a crazy reaction to her sugars. SCARY! I don't think I've been so scared since the time she had her seizures when she was 2 and I had to call 911. By the time we left the hospital, she'd come down to a 217. So she was headed in the right direction. We got home around 1am so I figured I'd just stay up and check her sugar in another hour and a half. Frankie and I agreed that she should sleep with me so I could keep an eye on her so he went and got in her bed. At 2:30am...she was a 56!!!! CRAP! So I ran and grabbed the juice and tried to wake her. She wouldn't open her eyes so I pryed her lips open and put the straw in. I kept saying..."Kacey suck! Kacey suck the straw! You're low!" and she finally caught on and sucked the juice down. I knew she didn't have any IOB so she HAD to come up from there. Then 15min later....71! By this time she was alert enough to down some more juice and a pack of peanut butter crackers. She came up to a 137 and I layed back down with her. I was so scared to go back to sleep! I tested her again at 4am and she was a 123. Frankie got up for work at 5am. He left and got about 10 miles from home and felt this feeling that he NEEDED to come back home. Little did he know....I DID need him! After he left, Kacey woke up crying. She'd wet my bed! UGHHHHHHHHHHHH! She hasn't done that in a long time. Sadly, when sugars are crazy, it just can't be helped. I know all you D-Moms understand :( so I get up...change the sheets...Kacey strips and she heads back into my bathroom and she gets her tubing caught on the side of the bed and.....RIPS HER PUMP SITE OUT! By now she's screaming and hysterical. We'd just done that site change after she'd gotten out of the shower before the hospital. So I calm her down and prep for another site change. She's still crying and sniffling while I'm getting everything loaded which makes me even more upset. It was a mess! Frankie walked back in as we were laying back down. I explained what happened to him and I knew I had to get back up in 45min to get Kayleigh to the bus. He made me go lay back down with Kacey and he made sure Kayleigh got to the bus in time and he came back home and went back to sleep. Around 10am, we all woke back up. The ER doc wanted Kacey to stay home so we could observe her and make sure it didn't happen again.
Thursday 3-17-11
Happy St. Patrick's Day! It was NOT a very happy green day. We spent most of the day laying around and catching up on sleep from being up all night. Thankfully Kayleigh managed to sleep through all the chaos so she was in school. Kacey had that "weird feeling" again around dinner time that day but it wasn't as bad and it was only in her legs. It went away a few minutes later. She didn't have anymore problems the rest of the night.
That evening, since I'd had such a rough few days, my hubby decided that we needed an evening out with the girls. So we took them out to dinner to chill out. I didn't have to cook. He didn't have to cook. So we were all happy! LOL!
Saturday 3-19-11
We met my Mom for breakfast as we always do. We went shopping and Kacey got her new fish for the tank she got for her birthday. It was a fun day out! We were invited to another Starlight event to see the Richmond Raiders play their opening game but unfortunately Kacey's sugars went whacko again and she was having those "weird feelings" so we felt that we better not chance it! She was disappointed because the kids were going to get to go down on the field and they were having a Meet & Greet with the players. But sometimes diabetes just doesn't play along and it makes it tough!
Sunday 3-20-11
Ahhhhh.....CHURCH! :) We went to early service so we had time to get home, eat lunch and prepare for an exciting night....WINTERJAM 2011!!! If you don't know what WinterJam is then you can check it out! We were planning to meet the church youth at 4pm and all drive down there together. We ended up leaving at early and got to the Scope at 3pm...stood in line til 4:30pm when they opened the doors! It was a madhouse!!! It was general admission on seating and everyone was saving seats so it was pretty insane. We did manage to score some seats in the 2nd balcony and we all had a fabulous time!
Monday 3-21-11
No School! It was a teacher workday so the students were out of school. Both girls had well check ups at their NEW pediatrician. We were all a little nervous but I'd heard some wonderful things about her. Turns out...those things I heard were....SPOT ON! She was AMAZING! She even knows the girls Endos, had knowledge of Type 1 diabetes and hypoglycemia, jumped right on and refilled Kayleigh's inhalers and then both girls had to get shots. When she went out of the room, both girls were chattering about how much they liked her and how comfortable she made them feel. ***sigh*** Ever since we had to switch pediatricians when Kayleigh was 7 and Kacey was 2...I haven't been happy with a single one of the doctors UNTIL NOW! We adored Dr. O when she was our pediatrician and I used to be able to call her and she knew us on a first name basis (yeah that means we saw her alot...LOL!) But it was nice to have a doc that I could call at any time fo the day or night. I've found that again! This pediatrician's office has a well baby office, sick baby office and a teen office. Both girls were seen on the teen side and it was nice. They were treated like "little adults" and she talked with them about all kinds of things from internet dangers, seatbelts, drunk driving and even boys. It was REALLY nice! She asked them all about their favorite things to do and their dislikes...really taking the time to get to know them. And....SHE'S A GIRL!!! Hahaha! It's the one thing my girls have been begging for...a lady doctor. So now we have it and we're all happy!
As I was praying last night, a severe thunderstorm rolled up really fast. The cracks of thunder made me jump and the electrical lightening was terrifying. It made me really start to think. All of this turmoil has been like a thunderstorm and wreaking havoc on my body. God was sending a reminder to give it all to him and He will calm the storm within me. I did just that! The storm was gone within 20 minutes and it had passed. Another reminder of how the storms in our life WILL to pass. We have to wait out the storm and as long as we hold tight to faith then we will be brought into the calming. It's been tough. I won't lie! I was holding tight to these bitter feelings and the anger at the School Board as well as some other harbored feelings. Once I let go, my cell phone buzzed telling me to check my email. I won't say who...but I've known this man since birth and I call him brother...LOL! I turned my computer back on...sat down and read my email. I wept uncontrollably as I saw that a large money amount was given as a love gift for our trip. Frankie came running in because he thought he was bad news when he heard me crying. Then both girls came running in and we all just sat here in tears as we actually saw God's work put into motion. It's in God's hands. He knows our needs. WHY, oh WHY did I ever worry to start with? FAITH! I had lost faith that He would provide. I've been witness to it before so WHY did I think I would be failed now? Words cannot even begin to explain how blessed I feel. I'm blessed with a wonderful husband that provides for us. I'm blessed with 2 beautiful daughters that love me unconditionally. I'm blessed with a mother that would give me the shirt off her back to help in any way she could. I'm blessed with a brother that has bent over backwards for me in more ways than I can name (BTW, I am in LOVE with my Blackberry Storm that he just gave to me a week ago). I'm blessed with a best friend that listens to my problems and cares even though she struggles with her own issues. She still takes the time to hear me whine. I'm blessed with an amazing group of online D-Mommas and D-Friends who have been my backbone for the last 3 years. I'm blessed with an awesome church family that have welcomed our family with open and loving arms. I've been blessed to be a stay at home Mom with my girls since Kacey was born. We might not be the richest in money but we're richest in love. I've never missed a meal and even when times were tight and I wasn't sure how we were gonna make it...somehow, someway, we always did! And ultimately I'm blessed with an AWESOME GOD!!! For those of you out there that have lost faith, it's not too late to turn back to Him. Give it all to God and watch your blessings unfold right before your eyes.
So as I close, if you made it this far then thank for putting up with my massive update. I sit with a calming within knowing that it's out of my hands now and in God's.
Wednesday 3-16-11
Kacey had her Endo check up. I was praying for good numbers but I knew what we'd been through over the last few months so I wasn't expecting it to be pretty. The visit went great and we weren't yelled at because we've been in contact with her Endo every single week making changes to basals and carb ratios trying to get these growth spurts and hormones under control....which we all know is nearly impossible. So...the bad news was her A1c had gone up to 9.1%. I was sad to hear it but I knew I'd done everything I could to get it lower. Her Endo reassured me that we had to keep plugging along and eventually it would come back down. Those female hormones are wreaking havoc on her system AND...she grew ANOTHER inch! She is now 59.5in tall....1/2 inch from 5 FEET! Her foot has grown 2 sizes since December so there is a reason for all these crazy numbers. Her Endo did make some more changes to basals to see if we can get those afternoon lows to settle down. More good news....we submitted the paperwork for Dexcom! Kacey is VERY excited and her Endo thinks it will be a very useful tool for us.
Once we got home, Kacey was in the kitchen with me and she says "Mom, have you ever felt like you were standing but you couldn't feel your legs?" Ummmm.....NO! I immediately made her check her blood sugar. She was in the 200's so I was assuming it was because she was high. She ate lunch and we went outside to enjoy the beautiful weather. We came back inside around dinner time and she was still in the 200's. Not normal for her...usually all the bike riding and running around would drop her like a hot potato. She ate dinner and then about 2 hours later, I had her get a shower. When she got out of the shower, she called for me and said "I have that weird feeling again. The one that I can't feel like I'm standing and now it's in my arms too." So I had her come out and lay across my bed to settle herself. She started crying because she said it was a "weird feeling and she was scared". She said she felt like she did when her sugar was a 36. So I grabbed her kit to see if she'd dropped....nope she was in 300's now. She started screaming and crying insisting she was low so I grabbed another meter to make sure there wasn't anything funky going on....nope still 300's! I did her site change and I let her get back in bed with me to watch TV. She layed there and continued to cry and then about an hour later she went into something like a panic attack. She could not physically move her arms or her legs! She couldn't wiggle her toes at all. It was like she was temporarily paralyzed and she was hysterical. I couldn't stand it any longer! Frankie and I pulled her to her feet and drug her to the van and rushed her to the ER. They took us right back since her blood sugar had hit the 400's by then. She was still hysterical but she'd gotten some movement back in her arms about an hour after we got there. The ran tons of blood work and about 3 hours later, she was able to start moving her legs. Nothing showed in the labs...no DKA...no crazy numbers in cell counts....nothing! So the only thing they can think was it was a crazy reaction to her sugars. SCARY! I don't think I've been so scared since the time she had her seizures when she was 2 and I had to call 911. By the time we left the hospital, she'd come down to a 217. So she was headed in the right direction. We got home around 1am so I figured I'd just stay up and check her sugar in another hour and a half. Frankie and I agreed that she should sleep with me so I could keep an eye on her so he went and got in her bed. At 2:30am...she was a 56!!!! CRAP! So I ran and grabbed the juice and tried to wake her. She wouldn't open her eyes so I pryed her lips open and put the straw in. I kept saying..."Kacey suck! Kacey suck the straw! You're low!" and she finally caught on and sucked the juice down. I knew she didn't have any IOB so she HAD to come up from there. Then 15min later....71! By this time she was alert enough to down some more juice and a pack of peanut butter crackers. She came up to a 137 and I layed back down with her. I was so scared to go back to sleep! I tested her again at 4am and she was a 123. Frankie got up for work at 5am. He left and got about 10 miles from home and felt this feeling that he NEEDED to come back home. Little did he know....I DID need him! After he left, Kacey woke up crying. She'd wet my bed! UGHHHHHHHHHHHH! She hasn't done that in a long time. Sadly, when sugars are crazy, it just can't be helped. I know all you D-Moms understand :( so I get up...change the sheets...Kacey strips and she heads back into my bathroom and she gets her tubing caught on the side of the bed and.....RIPS HER PUMP SITE OUT! By now she's screaming and hysterical. We'd just done that site change after she'd gotten out of the shower before the hospital. So I calm her down and prep for another site change. She's still crying and sniffling while I'm getting everything loaded which makes me even more upset. It was a mess! Frankie walked back in as we were laying back down. I explained what happened to him and I knew I had to get back up in 45min to get Kayleigh to the bus. He made me go lay back down with Kacey and he made sure Kayleigh got to the bus in time and he came back home and went back to sleep. Around 10am, we all woke back up. The ER doc wanted Kacey to stay home so we could observe her and make sure it didn't happen again.
Thursday 3-17-11
Happy St. Patrick's Day! It was NOT a very happy green day. We spent most of the day laying around and catching up on sleep from being up all night. Thankfully Kayleigh managed to sleep through all the chaos so she was in school. Kacey had that "weird feeling" again around dinner time that day but it wasn't as bad and it was only in her legs. It went away a few minutes later. She didn't have anymore problems the rest of the night.
That evening, since I'd had such a rough few days, my hubby decided that we needed an evening out with the girls. So we took them out to dinner to chill out. I didn't have to cook. He didn't have to cook. So we were all happy! LOL!
Saturday 3-19-11
We met my Mom for breakfast as we always do. We went shopping and Kacey got her new fish for the tank she got for her birthday. It was a fun day out! We were invited to another Starlight event to see the Richmond Raiders play their opening game but unfortunately Kacey's sugars went whacko again and she was having those "weird feelings" so we felt that we better not chance it! She was disappointed because the kids were going to get to go down on the field and they were having a Meet & Greet with the players. But sometimes diabetes just doesn't play along and it makes it tough!
Sunday 3-20-11
Ahhhhh.....CHURCH! :) We went to early service so we had time to get home, eat lunch and prepare for an exciting night....WINTERJAM 2011!!! If you don't know what WinterJam is then you can check it out! We were planning to meet the church youth at 4pm and all drive down there together. We ended up leaving at early and got to the Scope at 3pm...stood in line til 4:30pm when they opened the doors! It was a madhouse!!! It was general admission on seating and everyone was saving seats so it was pretty insane. We did manage to score some seats in the 2nd balcony and we all had a fabulous time!
Monday 3-21-11
No School! It was a teacher workday so the students were out of school. Both girls had well check ups at their NEW pediatrician. We were all a little nervous but I'd heard some wonderful things about her. Turns out...those things I heard were....SPOT ON! She was AMAZING! She even knows the girls Endos, had knowledge of Type 1 diabetes and hypoglycemia, jumped right on and refilled Kayleigh's inhalers and then both girls had to get shots. When she went out of the room, both girls were chattering about how much they liked her and how comfortable she made them feel. ***sigh*** Ever since we had to switch pediatricians when Kayleigh was 7 and Kacey was 2...I haven't been happy with a single one of the doctors UNTIL NOW! We adored Dr. O when she was our pediatrician and I used to be able to call her and she knew us on a first name basis (yeah that means we saw her alot...LOL!) But it was nice to have a doc that I could call at any time fo the day or night. I've found that again! This pediatrician's office has a well baby office, sick baby office and a teen office. Both girls were seen on the teen side and it was nice. They were treated like "little adults" and she talked with them about all kinds of things from internet dangers, seatbelts, drunk driving and even boys. It was REALLY nice! She asked them all about their favorite things to do and their dislikes...really taking the time to get to know them. And....SHE'S A GIRL!!! Hahaha! It's the one thing my girls have been begging for...a lady doctor. So now we have it and we're all happy!
As I was praying last night, a severe thunderstorm rolled up really fast. The cracks of thunder made me jump and the electrical lightening was terrifying. It made me really start to think. All of this turmoil has been like a thunderstorm and wreaking havoc on my body. God was sending a reminder to give it all to him and He will calm the storm within me. I did just that! The storm was gone within 20 minutes and it had passed. Another reminder of how the storms in our life WILL to pass. We have to wait out the storm and as long as we hold tight to faith then we will be brought into the calming. It's been tough. I won't lie! I was holding tight to these bitter feelings and the anger at the School Board as well as some other harbored feelings. Once I let go, my cell phone buzzed telling me to check my email. I won't say who...but I've known this man since birth and I call him brother...LOL! I turned my computer back on...sat down and read my email. I wept uncontrollably as I saw that a large money amount was given as a love gift for our trip. Frankie came running in because he thought he was bad news when he heard me crying. Then both girls came running in and we all just sat here in tears as we actually saw God's work put into motion. It's in God's hands. He knows our needs. WHY, oh WHY did I ever worry to start with? FAITH! I had lost faith that He would provide. I've been witness to it before so WHY did I think I would be failed now? Words cannot even begin to explain how blessed I feel. I'm blessed with a wonderful husband that provides for us. I'm blessed with 2 beautiful daughters that love me unconditionally. I'm blessed with a mother that would give me the shirt off her back to help in any way she could. I'm blessed with a brother that has bent over backwards for me in more ways than I can name (BTW, I am in LOVE with my Blackberry Storm that he just gave to me a week ago). I'm blessed with a best friend that listens to my problems and cares even though she struggles with her own issues. She still takes the time to hear me whine. I'm blessed with an amazing group of online D-Mommas and D-Friends who have been my backbone for the last 3 years. I'm blessed with an awesome church family that have welcomed our family with open and loving arms. I've been blessed to be a stay at home Mom with my girls since Kacey was born. We might not be the richest in money but we're richest in love. I've never missed a meal and even when times were tight and I wasn't sure how we were gonna make it...somehow, someway, we always did! And ultimately I'm blessed with an AWESOME GOD!!! For those of you out there that have lost faith, it's not too late to turn back to Him. Give it all to God and watch your blessings unfold right before your eyes.
So as I close, if you made it this far then thank for putting up with my massive update. I sit with a calming within knowing that it's out of my hands now and in God's.
Tuesday, March 15, 2011
Middle School Visit
Last night was "Elective Night" at Kacey's new middle school. We all gathered in the auditorium....3 elementary school's students all feeding into one middle school. The jazz band put on a wonderful performance for us. After hearing a spill from the PTA president and then a small introduction of the school principal, we were able to walk around to 7 different elective classrooms, listen to the teachers tell us about their class and then explore the classroom to see if it interested Kacey.
Elective classes are:
Band
Chorus
Introduction to Foreign Language
Teen Living (like what we called Home Economics...cooking & sewing)
Keyboarding (required class that recieves 1/2 of a high school credit)
Technology
Art Foundations
Every single one of the teachers that teach those classes are teachers that were there when Kayleigh was there and 6 out of the 7 taught her! She never took band so she didn't have that teacher. Compared to those kids there, Kayleigh still "looks" like a middle schooler because she's so small!
After walking around to all of the classes, Kacey knew for sure she wanted to take band. The teacher is so outgoing and you can tell she truely loves her job! I think she and Kacey will mesh VERY well. And since band requires some staying after school and traveling, I don't feel like diabetes is going to be a huge issue for her. I was amazed at how comfortable and welcome I felt in her class and Kacey was just through the roof when she found out that the first 2 weeks of school is spent playing ALL of the instruments and then deciding which one she wants to play. They start from the basics...reading music and listening to sound pitches...and then move forward. Kacey has waited 3 longgggg years for this time to come. She's very into music and her goal is to get good enough that she can join in the Youth band at church. Very cool, huh? :) Right now, they're only choosing one elective but they're hoping the scheduling for next year allows for them to choose 2 again. Also, they mentioned gym being a requirement again. So we're not sure what we will be faced with if that happens. We will cross that bridge when we get to it and if she's required to do gym then we'll just have to make some pump changes and pray for the best! It will all work out!
So all in all, Kacey is very excited about middle school. MUCH more excited than I thought she'd be. We're hoping that a new school, new friends and new atmosphere will help her blossom even more than she has already. She's had a rough road the last few years and I think we're finally turning a corner!
Tomorrow is D-Report Card Day....BLECH! I'm pretty sure her A1c hasn't budged. She's still pinging all over the place...from low 40's to high 300's. It's nasty! She's been having regular afternoon lows again and I've adjusted basals but she's still bottoming out between 3pm-5pm. And when she drops, it's the sprawl-out-on-the-floor-and-scream-I'm sooooooo low-kind of drops. She cries. She lays there in a paralyzed state. She yells that she can't hold her cup. She sucks down 2 cups of juice at a time to try and bring her up. she flat out REFUSES glucose tabs now. She argues back with me when I tell her she HAS to drink. She whines and lays there like she's dying. It's HORRIBLE to watch! And then I sit there trying to figure out....is this REAL? is she REALLY feeling like shes on her death bed? is she REALLY feeling this bad? is she REALLY feeling like her arms are so heavy she can't hold her cup or sit up? I DON'T KNOW! I don't know what a freaking LOW feels like!!! It kills me!!! I read about the toll that a low has on the body and I just can't seem to "feel" what that feels like. So, I believe her. I believe that she feels like crap. I believe that she feels like she can't sit up. I believe that she feels the need to argue. Any adult T1's that can reassure me that she's not playing this up? Do you REALLY feel like laying sprawled out on the floor and screaming?
Today is my parent meeting for Culinary today. We're discussing the upcoming trip to Kansas and trying to figure out how much we have to fundraise. It's going to be a BIG one! The kids are going to continue their Tuesday practice. I'm getting excited and my fundraising brain is in full force!!!!
Elective classes are:
Band
Chorus
Introduction to Foreign Language
Teen Living (like what we called Home Economics...cooking & sewing)
Keyboarding (required class that recieves 1/2 of a high school credit)
Technology
Art Foundations
Every single one of the teachers that teach those classes are teachers that were there when Kayleigh was there and 6 out of the 7 taught her! She never took band so she didn't have that teacher. Compared to those kids there, Kayleigh still "looks" like a middle schooler because she's so small!
After walking around to all of the classes, Kacey knew for sure she wanted to take band. The teacher is so outgoing and you can tell she truely loves her job! I think she and Kacey will mesh VERY well. And since band requires some staying after school and traveling, I don't feel like diabetes is going to be a huge issue for her. I was amazed at how comfortable and welcome I felt in her class and Kacey was just through the roof when she found out that the first 2 weeks of school is spent playing ALL of the instruments and then deciding which one she wants to play. They start from the basics...reading music and listening to sound pitches...and then move forward. Kacey has waited 3 longgggg years for this time to come. She's very into music and her goal is to get good enough that she can join in the Youth band at church. Very cool, huh? :) Right now, they're only choosing one elective but they're hoping the scheduling for next year allows for them to choose 2 again. Also, they mentioned gym being a requirement again. So we're not sure what we will be faced with if that happens. We will cross that bridge when we get to it and if she's required to do gym then we'll just have to make some pump changes and pray for the best! It will all work out!
So all in all, Kacey is very excited about middle school. MUCH more excited than I thought she'd be. We're hoping that a new school, new friends and new atmosphere will help her blossom even more than she has already. She's had a rough road the last few years and I think we're finally turning a corner!
Tomorrow is D-Report Card Day....BLECH! I'm pretty sure her A1c hasn't budged. She's still pinging all over the place...from low 40's to high 300's. It's nasty! She's been having regular afternoon lows again and I've adjusted basals but she's still bottoming out between 3pm-5pm. And when she drops, it's the sprawl-out-on-the-floor-and-scream-I'm sooooooo low-kind of drops. She cries. She lays there in a paralyzed state. She yells that she can't hold her cup. She sucks down 2 cups of juice at a time to try and bring her up. she flat out REFUSES glucose tabs now. She argues back with me when I tell her she HAS to drink. She whines and lays there like she's dying. It's HORRIBLE to watch! And then I sit there trying to figure out....is this REAL? is she REALLY feeling like shes on her death bed? is she REALLY feeling this bad? is she REALLY feeling like her arms are so heavy she can't hold her cup or sit up? I DON'T KNOW! I don't know what a freaking LOW feels like!!! It kills me!!! I read about the toll that a low has on the body and I just can't seem to "feel" what that feels like. So, I believe her. I believe that she feels like crap. I believe that she feels like she can't sit up. I believe that she feels the need to argue. Any adult T1's that can reassure me that she's not playing this up? Do you REALLY feel like laying sprawled out on the floor and screaming?
Today is my parent meeting for Culinary today. We're discussing the upcoming trip to Kansas and trying to figure out how much we have to fundraise. It's going to be a BIG one! The kids are going to continue their Tuesday practice. I'm getting excited and my fundraising brain is in full force!!!!
Friday, March 11, 2011
Double Low
They did it to me AGAIN! Both girls dropped low at the same time. They seem to think it's funny to watch me run around like a crazy juicebox superhero! Kacey was a 41 and Kayleigh was a 64. I decided to snap a picture since they were both laying on the couch trying to re-coop. Check out those blank stares! It's the stare that all of us D-Moms know so very well!
Lots of exciting things happening next week!
Sunday is my hubby's birthday and we're also meeting with an elder from the church to become members.
Monday is Kacey's parent night at Middle School. YIKES! She chooses her electives that night.
Tuesday is Kay's Culinary practice and we will be having a parent meeting about the upcoming travel information at some point during the week.
Wednesday is D-Report Card Day at the Endo's office for Kacey.
Thursday is Youth group night for Kayleigh and Ladies group night for me.
Friday....whoaaaa we have a free night for now!
Saturday is another Starlight event in Richmond to see the Richmond Raiders Indoor Football team on opening night
Sunday is WINTERJAM!!!! :) Soooo looking forward to this experience!
So if I go missing in action then you all know where I am...HAHA!!!
Tuesday, March 8, 2011
Culinary Competition
Drum roll please.......... WE WON FIRST PLACE!!!!
Kay competed in the Va ProStart culinary competition last weekend and they were up against 9 other teams. It was a VERY intense competition....sorta like Jr. Iron Chef Challenge. They had 60 minutes to complete a 2 serving...3 course meal. She won over $50,000 in scholarships to Culinary schools locally.
So what does this mean? We are off to KANSAS!!!
Kay competed in the Va ProStart culinary competition last weekend and they were up against 9 other teams. It was a VERY intense competition....sorta like Jr. Iron Chef Challenge. They had 60 minutes to complete a 2 serving...3 course meal. She won over $50,000 in scholarships to Culinary schools locally.
So what does this mean? We are off to KANSAS!!!
11th Bday
HAPPY 11th BIRTHDAY to MY BABY GIRL
KACEY BROOKE
She got a new cell phone for her birthday and she was even more excited to find out that she gets UNLIMITED texting with her phone just like her sister has! As soon as she got it, she texted me from the back seat saying "Thank you Mommy! I love you!". Ahhhhhhhhhhhh!!!! And within the hour, she'd figured out the whole phone! We took her to the mall and Kayleigh bought her a case for it from her.
Thursday, March 3, 2011
What Do You See?
I've shared this photo before but on my way to taking Kacey to school this morning, I decided to take another picture of it this year. Look closely....what do you see? Yes, there is a grassy hill, a road sign, a road, weeds...but if you look past all of those things you will see DOUBLE CROSSES.
Yes, one lays on the hill and the other stands upright.
To anyone NOT looking for them, they just look like shadows from a street sign and a electric pole....but when I see these shadows my heart overflows. It wells up so big that it nearly brings me to tears every morning that the sun is shining so bright. We don't get the chance to see this year round though. As the time changes in the fall, the cross starts to disappear. But every spring we are reminded that He is there.
When you start to really think about it...the meaning is AMAZING!
What do you see?
Are you looking at the weeds or are you standing before a cross?
"You can tell the size of your God by looking at the size of your worry list. The longer your list, the smaller your God."
~Author Unknown
Ohhhhh and if you haven't registered yet for Rachel's SUGAR BOLUS ...there is still time! HURRY! But not too fast cuz Kacey wants to win! LOL!
Wednesday, March 2, 2011
Results Are In!
Over the last week, my stomach has been in knots. When I'd feel that rumbling stirring up, I'd drop what I was doing and take time to just sit down and pray. I prayed for peace within. I prayed for good results. I prayed that if we had to be dealt dreadful news then please give me some strength to be able to accept it. I just prayed and prayed.
Yesterday I got an email from Kacey's NP. I email sugar logs each week and we collectively look at them and make changes in her pump. So she had emailed me back with a change and we were discussing those afternoon lows and Kacey's scary low that just happened. I decided that it wouldn't hurt to ask to see if Kayleigh's lab results had come back yet? So I did! When she replied, she said she would have someone get in contact with me about the results. OK...you all know that if they say that then its NEVER good! Then I got another email telling me that she talked with Dr. SS and she will be calling me sometime during the day. I headed for a tailspin. WHY weren't they telling me? WHAT was wrong? Was something wrong in the lab work? Was it RH or was it T1? A million things swirled through my head at that moment. Thankfully there was instant Facebook support that reminded me to stop and pray about it. I needed a clear mind to be able to accept whatever Dr. SS was about to tell me.
About an hour later, my cell phone rang. ***Dr. R's Office*** is what came across the screen. I knew that I was about to hear the results and whatever they were...I COULD accept them! I answered it and heard the sweetest voice...it was Dr. SS. She told me that they had the results and that the only one they didn't have back yet was the Antibody test and that one takes longer to get back. She went on to say that the test did EXACTLY what they wanted to see her body do. She went on to explain how when they did the blood draw, they were looking at glucose and insulin levels. As most of you know, when you eat your blood sugar rises and the job of your pancreas is to spit out insulin to cover the food you just ate. Well Kayleigh's pancreas did that but then at the 2 hour mark, her pancreas spit more insulin which made her bottom out. She read me off the levels but I really don't understand the numbers. So basically she said what this means is she has Reactive Hypoglycemia.... BUT...(yep theres always that BUT) ***I literally held my breath at this point) this does NOT mean she will not develop Type 1. RH can be a precursor for T1. The pancreas is overactive and then all of a sudden it decides to completly stop. She also said we're still waiting for that antibody test. PLEASE pray for a negative!! So for right now, she's got RH and if we start seeing any higher blood sugar numbers then we will cross that other bridge if we are faced with it. She is going to have to make sure she's eating meals every 2-3 hours and they have to contain protein, carb and fat with each one. This will keep her sugar up and stable and she won't drop as much as she has been lately. Her A1c was a 5.3% which is GREAT! So either the at home A1c results were off by 3% OR she's just had so many lows lately that it made it come down 3% in a few weeks. Either way...I'm glad it wasn't higher. She did say that the other blood work that Dr. G had ordered came back good and there was an elevation in the Cortisol one but that wasn't abnormal since the blood work was done AFTER she had the bad low and her body reacted. I also asked why she would have those high's after eating and then take so long to come down and she said it was from the low that she had...being so scared...the reaction her body had. So that all made sense and it made me feel a little better.
I feel better that we have a diagnosis. I feel better knowing that I can manage this with food intake, unlike Kacey's T1. Am I still scared? YES! I'm worried that now she's going to develop an eating disorder because she's feeling that she has to eat all the time to make sure her sugar doesn't drop. Then I have those same fears that I have with Kacey...the ones that creep in and take over my brain...the fears of her sugar dropping to the point that she won't wake up.
What's a Mom to do? HAVE FAITH! I have to have faith that the Lord will keep watch over them both. I have to have faith that He will take care of them. It's hard! We are so driven to "control" our lives ourselves and we are not the ones who have the control. No matter what we say or do, God is in control. So who am I to try and take that over? As much as I want to have that power over my life, it sounds much easier to hand that power over to Him and let Him take some of this weight off of my shoulders.
And so today...I thank God for his glory. I thank Him for a new day. I thank Him for giving us the lesser of the two evils and if we're dealt that T1 diagnosis later on with Kayleigh then I will thank Him for giving me the knowledge to already take care of her. It's so difficult to see blessings in bad things that happen but I'm confident that He will show me this blessing. He will provide. He will be first in my life.
I'm going to end this on a good note....
I did ask Kaceys NP if we could go forward with Dexcom since we can't have pump approval for another year. It's a GO! :) I'm filling out the paperwork today and getting it faxed in so we can get the ball rolling with that. Kacey is VERY excited! Her NP said that we didn't have to go through the trial since we'd done the trial 2 years ago. So thats GREAT news!!!
Yesterday I got an email from Kacey's NP. I email sugar logs each week and we collectively look at them and make changes in her pump. So she had emailed me back with a change and we were discussing those afternoon lows and Kacey's scary low that just happened. I decided that it wouldn't hurt to ask to see if Kayleigh's lab results had come back yet? So I did! When she replied, she said she would have someone get in contact with me about the results. OK...you all know that if they say that then its NEVER good! Then I got another email telling me that she talked with Dr. SS and she will be calling me sometime during the day. I headed for a tailspin. WHY weren't they telling me? WHAT was wrong? Was something wrong in the lab work? Was it RH or was it T1? A million things swirled through my head at that moment. Thankfully there was instant Facebook support that reminded me to stop and pray about it. I needed a clear mind to be able to accept whatever Dr. SS was about to tell me.
About an hour later, my cell phone rang. ***Dr. R's Office*** is what came across the screen. I knew that I was about to hear the results and whatever they were...I COULD accept them! I answered it and heard the sweetest voice...it was Dr. SS. She told me that they had the results and that the only one they didn't have back yet was the Antibody test and that one takes longer to get back. She went on to say that the test did EXACTLY what they wanted to see her body do. She went on to explain how when they did the blood draw, they were looking at glucose and insulin levels. As most of you know, when you eat your blood sugar rises and the job of your pancreas is to spit out insulin to cover the food you just ate. Well Kayleigh's pancreas did that but then at the 2 hour mark, her pancreas spit more insulin which made her bottom out. She read me off the levels but I really don't understand the numbers. So basically she said what this means is she has Reactive Hypoglycemia.... BUT...(yep theres always that BUT) ***I literally held my breath at this point) this does NOT mean she will not develop Type 1. RH can be a precursor for T1. The pancreas is overactive and then all of a sudden it decides to completly stop. She also said we're still waiting for that antibody test. PLEASE pray for a negative!! So for right now, she's got RH and if we start seeing any higher blood sugar numbers then we will cross that other bridge if we are faced with it. She is going to have to make sure she's eating meals every 2-3 hours and they have to contain protein, carb and fat with each one. This will keep her sugar up and stable and she won't drop as much as she has been lately. Her A1c was a 5.3% which is GREAT! So either the at home A1c results were off by 3% OR she's just had so many lows lately that it made it come down 3% in a few weeks. Either way...I'm glad it wasn't higher. She did say that the other blood work that Dr. G had ordered came back good and there was an elevation in the Cortisol one but that wasn't abnormal since the blood work was done AFTER she had the bad low and her body reacted. I also asked why she would have those high's after eating and then take so long to come down and she said it was from the low that she had...being so scared...the reaction her body had. So that all made sense and it made me feel a little better.
I feel better that we have a diagnosis. I feel better knowing that I can manage this with food intake, unlike Kacey's T1. Am I still scared? YES! I'm worried that now she's going to develop an eating disorder because she's feeling that she has to eat all the time to make sure her sugar doesn't drop. Then I have those same fears that I have with Kacey...the ones that creep in and take over my brain...the fears of her sugar dropping to the point that she won't wake up.
What's a Mom to do? HAVE FAITH! I have to have faith that the Lord will keep watch over them both. I have to have faith that He will take care of them. It's hard! We are so driven to "control" our lives ourselves and we are not the ones who have the control. No matter what we say or do, God is in control. So who am I to try and take that over? As much as I want to have that power over my life, it sounds much easier to hand that power over to Him and let Him take some of this weight off of my shoulders.
And so today...I thank God for his glory. I thank Him for a new day. I thank Him for giving us the lesser of the two evils and if we're dealt that T1 diagnosis later on with Kayleigh then I will thank Him for giving me the knowledge to already take care of her. It's so difficult to see blessings in bad things that happen but I'm confident that He will show me this blessing. He will provide. He will be first in my life.
I'm going to end this on a good note....
I did ask Kaceys NP if we could go forward with Dexcom since we can't have pump approval for another year. It's a GO! :) I'm filling out the paperwork today and getting it faxed in so we can get the ball rolling with that. Kacey is VERY excited! Her NP said that we didn't have to go through the trial since we'd done the trial 2 years ago. So thats GREAT news!!!
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