Wednesday, May 6, 2009

Speaking Out

I got a very cool phone call today from Lori at JDRF. For those of you that haven't read further back in my blog, Lori is the lady I was put in touch with for Kacey to receive her Bag of Hope from JDRF when she came out of the hospital. Lori sent us Rufus :) (which we will forever be greatful for!) So back to my phone call... I was at work today and my phone rang with a local number. I took the call and it was her! She was calling to ask Kacey and I to join JDRF when they go to visit Congressman Glenn Nye on Friday. My first instinct... OMG WOOOOWWWW Thats COOL!!!! Then I was quickly hit with... Oh crap! Friday is a school day...Kacey will miss out on school work...I have a job that day and I don't want to have to cancel. Geesh....what a priviledge to be able to go speak with JDRF. I hope this isn't one of those opportunities I'm going to kick myself for not doing. We would have to get up and leave the house by 6am to miss all the morning traffic and head down to Va Beach. Then fight everything coming home. I wouldn't mind doing that but since it's a school day and she's missed so many days already for being sick, I'm going to pass it up. I did tell Lori to PLEASE let us know when something else like this comes up because I know my "Lil D-Advocate" would love to participate in something like this. She does such a wonderful job educating everyone around her and getting people involved so this was right up her alley!

Been a busy few days for us. I love being back to work! I love the reward of walking down the hall and having my name shouted and followed by waving arms and to top it off...the reward of being bombarded with kids who give you hugs because they miss you being in their class! It makes it all worth it :)

Kacey's numbers took a turn after those fries. We're still battling blood sugars in the 300's with no reason why. So, were the fries really evil or did her body just say "Enough with being normal, it's time to drive Mumma nuts again!" I'm beginning to think it's the second one! Hopefully with the use of Dex we will be able to see if there is a pattern to these numbers that we just can't seem to catch with testing 8-10 times a day.


Shamae said...

Wow how cool Jill!! Sorry it won't work for ya this time! I'm sure you will have many more opportunities. Maybe Kacy has a little bug or something and it is raising her sugar levels? Even a bug with no symptoms? Or maybe she is at the tail end of her honeymoon period and she requires a tad more insulin than before or maybe it is just a weird diabetes thing that has no cause and will go away on its own! Crazy diabetes. :-) We are dealing with the opposite....lows. Best of luck!!

Colleen said...

I commend you for your decision - tough one though...
I'm sure you and Kacey will be invited another time.

Scott K. Johnson said...

What an honor to be invited! Too bad it doesn't work out this time - as Colleen said, that was a tough decision to make. I too think you'll have plenty of opportunities.

Sorry to hear the numbers have been a bit wacky!

Wendy said...

That's so cool that they called you guys :) Tough call, but there IS this little thing called "LIFE" that doesn't always stop for diabetes!!!!

Good luck with the numbers -- FF tend to to the same thing to Addy's numbers. She's been all over the board lately. No patterns -- just randome craziness that drives me crazy.

Stinkin' diabetes.

No Sugar Needed said...

I'm going with the "it's time to drive Mumma nuts" version - :-D I know you are proud and well you should be - Nikki and I are sending you 'high fives' from Kentucky :-D